Research
My main interests are in the fields of outcomes research and health economics, with a current emphasis on patient reported outcome measures (PROMs) and on leveraging routine healthcare data to support care delivery, quality improvement and research. My research maps to themes of Health Informatics and Clinical Trials within my department and the wider University.
I would be pleased to hear from potential PhD students interested in research in the following areas: Patient-Reported Outcome Measures (PROMs) and/or analysis of routine health data (including electronic health records).
Patient Reported Outcome Measures (PROMs)
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The IBD-Control Questionnaire
My recent research has focused on development, validation and applications of the IBD-Control Questionnaire - a simple, generic PROM designed to measure "disease control from the patient perspective". Since it's original publication, IBD-Control has received growing recognition and international adoption in clinical practice, quality improvement and research. It is offered licence-free to the IBD community (copyright reserved).
For more information, please visit:
IBD-Control Questionnaire Website:
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A Generic Standardised Item Set for remote assessments in people requiring specialist outpatient care: The GeneSIS Project
I am Joint Lead for an NIHR-funded project which is focused on improving the use of remote assessment questionnaires in the NHS. Our work will seek to describe variation in practice, develop a taxonomy and produce a tool kit to support better standardisation of questionnaire content. Part of the project will explore stakeholder views on using validated, standardised generic questions where possible across chronic conditions.
Use of Routinely Collected Healthcare Data
I have a longstanding interest in finding ways to improve the use of routinely collected healthcare data, particularly Hospital Episode Statisics. Recent work funded by the UK Government (Connected Health Cities, North West Coast) generated a novel cohort-discovery algorithm for emergency admissions for alcohol-related liver disease. This work has challenged the use of simplistic definitions for generating statistics on NHS activity and outcome and we propose a new method for measuring true burden and mortality:
Connected Health Cities - Alcohol-related liver disease pathway
Liverpool Alcohol Related Liver Disease Algorithm - LAA
Towards a Learning Health System for ARLD
Independent endorsement of the LAA methodology
Latest Research: Ten-year trends in outcome for first admissions for ARLD in England
Research grants
A Generic Standardised Item Set for remote assessments in people requiring specialist outpatient care: The GeneSIS Project
DEPARTMENT OF HEALTH & SOCIAL CARE (UK)
December 2024 - November 2026
IBD Registry Research Analytical hub
IBD REGISTRY (UK)
April 2020 - September 2022
NIHR ARC 2 national social care implementation projects
DEPARTMENT OF HEALTH & SOCIAL CARE (UK), LCCG - LIVERPOOL CLINICAL COMMISSIONING GROUP (UK)
October 2019 - March 2026
Maximising the value of the UK IBD Registry for service delivery, audit and research
NAT ASSOC FOR COLITIS & CROHNS DISEASE (UK)
August 2015 - March 2019
Record keeping in patients with inflammatory bowel disease (IBD) within electronic patient record systems: Current practice and motivations for collecting structured data
MEDICAL RESEARCH COUNCIL
September 2017 - January 2021
Cost-effective modelling for benefit-risk assessment - PhD Studentship for Heather Catt
MEDICAL RESEARCH COUNCIL
October 2015 - December 2018