Publications
Selected publications
- Patient and public involvement in research: the need for budgeting PPI staff costs in funding applications. (Journal article - 2023)
- Developing a More Tailored Approach to Patient and Public Involvement with Children and Families in Pediatric Clinical Research: Lessons Learned (Journal article - 2022)
- Standardised data on initiatives-STARDIT: Beta version. (Journal article - 2022)
- Keeping patient and public partnership at the heart of medical technology development during Covid-19: examples of adaptive practice. (Journal article - 2022)
- Co-creation of practical “how-to guides” for patient engagement in key phases of medicines development—from theory to implementation (Journal article - 2021)
- How do we know what works? Evaluating data on the extent and impact of young people’s involvement in English health research (Journal article - 2020)
- Guidance on development and operation of Young Persons' Advisory Groups (Journal article - 2020)
- How to involve children and young people in what is, after all, their research (Journal article - 2019)
- Making research central to good paediatric practice (Journal article - 2019)
- Involving children and young people in clinical research through the forum of a European Young Persons' Advisory Group: needs and challenges (Journal article - 2018)
2024
Developments in the Design, Conduct, and Reporting of Child Health Trials.
Baba, A., Aregbesola, A., Caldwell, P. H. Y., Elliott, S. A., Elsman, E. B. M., Fernandes, R. M., . . . Offringa, M. (2024). Developments in the Design, Conduct, and Reporting of Child Health Trials.. Pediatrics, 154(1), e2024065799. doi:10.1542/peds.2024-065799
Infographic: Cost-effectiveness analysis of soft bandage and immediate discharge versus rigid immobilization in children with distal radius torus fractures.
Perry, D. C., Perry, D. C., Dritsaki, M., Achten, J., Appelbe, D., Knight, R., . . . Wood, D. (2024). Infographic: Cost-effectiveness analysis of soft bandage and immediate discharge versus rigid immobilization in children with distal radius torus fractures.. The bone & joint journal, 106-B(6), 631. doi:10.1302/0301-620x.106b6.bjj-2024-00045
Consent and assent in paediatric practice: it's the conversation that matters.
Davies, H. T., Preston, J., & Phillips, B. (2024). Consent and assent in paediatric practice: it's the conversation that matters.. Archives of disease in childhood, archdischild-2023-326454. doi:10.1136/archdischild-2023-326454
Protocol for Surgery or Cast of the EpicoNdyle in Children's Elbows (SCIENCE).
Achten, J., Appelbe, D., Spoors, L., Peckham, N., Kandiyali, R., Mason, J., . . . Perry, D. C. (2024). Protocol for Surgery or Cast of the EpicoNdyle in Children's Elbows (SCIENCE).. Bone & joint open, 5(1), 69-77. doi:10.1302/2633-1462.51.bjo-2023-0127.r1
Co-designing pediatric clinical trials with multistakeholders
Preston, J., Dews, S. A., Evett, S., Bassi, A., Barrick, D., & Ainsworth, S. (2024). Co-designing pediatric clinical trials with multistakeholders. In Essentials of Translational Pediatric Drug Development (pp. 327-345). Elsevier. doi:10.1016/b978-0-323-88459-4.00014-6
Embedding patient and public involvement into a doctoral study: developing a point-of-care HIV testing intervention for dental settings.
Doughty, J., Preston, J., Paisi, M., Hudson, A., Burns, F., Porter, S. R., & Watt, R. G. (2024). Embedding patient and public involvement into a doctoral study: developing a point-of-care HIV testing intervention for dental settings.. Frontiers in oral health, 5, 1359132. doi:10.3389/froh.2024.1359132
Involving children and young people as active partners in paediatric health research
Preston, J., Lappin, E., Ainsworth, J., Wood, C. L., & Dimitri, P. (2024). Involving children and young people as active partners in paediatric health research. Paediatrics and Child Health, 34(1), 11-16. doi:10.1016/j.paed.2023.10.003
The power of language: how to bridge the gap between healthcare research and patients - a scoping review.
Dews, S. -A., Daley, R., Bansal, A., Preston, J., & Bohm, N. (2024). The power of language: how to bridge the gap between healthcare research and patients - a scoping review.. Current medical research and opinion, 40(2), 279-291. doi:10.1080/03007995.2023.2295984
2023
The economic burden experienced by carers of children who had a critical deterioration at a tertiary children's hospital in the United Kingdom (the DETECT study): an online survey
Costa, E., Mateus, C., Carter, B., Siner, S., Jones, D., Evans, L., . . . Sefton, G. (2023). The economic burden experienced by carers of children who had a critical deterioration at a tertiary children's hospital in the United Kingdom (the DETECT study): an online survey. BMC PEDIATRICS, 23(1). doi:10.1186/s12887-023-04268-8
Characterising meaningful patient and public involvement in the pharmaceutical industry research setting: a retrospective quality assessment
Dews, S. -A., Bassi, A., Buckland, S., Clements, L., Daley, R., Davies, A., . . . Bohm, N. (2023). Characterising meaningful patient and public involvement in the pharmaceutical industry research setting: a retrospective quality assessment. BMJ OPEN, 13(8). doi:10.1136/bmjopen-2022-071339
Developing rights-based standards for children having tests, treatments, examinations and interventions: using a collaborative, multi-phased, multi-method and multi-stakeholder approach to build consensus.
Bray, L., Carter, B., Kiernan, J., Horowicz, E., Dixon, K., Ridley, J., . . . Robichaud, F. (2023). Developing rights-based standards for children having tests, treatments, examinations and interventions: using a collaborative, multi-phased, multi-method and multi-stakeholder approach to build consensus.. European journal of pediatrics. doi:10.1007/s00431-023-05131-9
Establishing a global regulatory floor for children's decisions about participation in clinical research
Joffe, S., Allen, A. J., Davis, J. M., Koppelman, E., Kornetsky, S. Z., Ku, G. M. V., . . . Bierer, B. E. (2023). Establishing a global regulatory floor for children's decisions about participation in clinical research. PEDIATRIC RESEARCH. doi:10.1038/s41390-023-02483-8
Reporting involvement activities with children and young people in paediatric research: a framework analysis.
Preston, J., Biglino, G., Harbottle, V., Dalrymple, E., Stalford, H., & Beresford, M. W. (2023). Reporting involvement activities with children and young people in paediatric research: a framework analysis.. Research involvement and engagement, 9(1), 61. doi:10.1186/s40900-023-00477-8
Providing multimedia information to children and young people increases recruitment to trials: pre-planned meta-analysis of SWATs
Knapp, P., Moe-Byrne, T., Martin-Kerry, J., Sheridan, R., Roche, J., Coleman, E., . . . Ainsworth, J. (2023). Providing multimedia information to children and young people increases recruitment to trials: pre-planned meta-analysis of SWATs. BMC MEDICINE, 21(1). doi:10.1186/s12916-023-02936-1
Priorities in Chronic nonbacterial osteomyelitis (CNO) - results from an international survey and roundtable discussions
Mohanna, M., Roberts, E., Whitty, L., Gritzfeld, J. F., Pain, C. E., Girschick, H. J., . . . Hedrich, C. M. (2023). Priorities in Chronic nonbacterial osteomyelitis (CNO) - results from an international survey and roundtable discussions. PEDIATRIC RHEUMATOLOGY, 21(1). doi:10.1186/s12969-023-00851-6
Patient and public involvement in research: the need for budgeting PPI staff costs in funding applications.
De Simoni, A., Jackson, T., Inglis Humphrey, W., Preston, J., Mah, H., Wood, H. E., . . . Porteous, C. (2023). Patient and public involvement in research: the need for budgeting PPI staff costs in funding applications.. Research involvement and engagement, 9(1), 16. doi:10.1186/s40900-023-00424-7
The effectiveness and acceptability of multimedia information when recruiting children and young people to trials: the TRECA meta-analysis of SWATs.
Knapp, P., Martin-Kerry, J., Moe-Byrne, T., Sheridan, R., Coleman, E., Roche, J., . . . Stones, C. (2023). The effectiveness and acceptability of multimedia information when recruiting children and young people to trials: the TRECA meta-analysis of SWATs.. Health and social care delivery research, 11(24), 1-112. doi:10.3310/htpm3841
2022
Perceptions and acceptability of microsampling in children and young people: a single-centre survey
Chetwynd, A. J., Marro, J., Whitty, L., Ainsworth, S., Preston, J., Salama, A., & Oni, L. (2022). Perceptions and acceptability of microsampling in children and young people: a single-centre survey. BMJ PAEDIATRICS OPEN, 6(1). doi:10.1136/bmjpo-2022-001716
Studying the Long-term Impact of COVID-19 in Kids (SLICK). Healthcare use and costs in children and young people following community-acquired SARS-CoV-2 infection: protocol for an observational study using linked primary and secondary routinely collected healthcare data from England, Scotland and Wales
Swann, O. V., Lone, N. I., Harrison, E. M., Tomlinson, L. A., Walker, A. J., Seaborne, M. J., . . . Docherty, A. B. (2022). Studying the Long-term Impact of COVID-19 in Kids (SLICK). Healthcare use and costs in children and young people following community-acquired SARS-CoV-2 infection: protocol for an observational study using linked primary and secondary routinely collected healthcare data from England, Scotland and Wales. BMJ OPEN, 12(11). doi:10.1136/bmjopen-2022-063271
Developing a More Tailored Approach to Patient and Public Involvement with Children and Families in Pediatric Clinical Research: Lessons Learned
Preston, J., Nafria, B., Ohmer, A., Gaillard, S., Dicks, P., West, L., & Turner, M. A. (2022). Developing a More Tailored Approach to Patient and Public Involvement with Children and Families in Pediatric Clinical Research: Lessons Learned. THERAPEUTIC INNOVATION & REGULATORY SCIENCE, 56(6), 948-963. doi:10.1007/s43441-022-00382-4
Improving communication of the concept of 'treat-to target' in childhood lupus: a public and patient (PPI) engagement project involving children and young people
Elliott, R. S., Taylor, E., Ainsworth, J., Preston, J., & Smith, E. M. D. S. (2022). Improving communication of the concept of 'treat-to target' in childhood lupus: a public and patient (PPI) engagement project involving children and young people. BMC RHEUMATOLOGY, 6(1). doi:10.1186/s41927-022-00300-z
Clinical utility and acceptability of a whole-hospital, pro-active electronic paediatric early warning system (the DETECT study): A prospective e-survey of parents and health professionals.
Carter, B., Saron, H., Blake, L., Eyton-Chong, C. -K., Dee, S., Evans, L., . . . Carrol, E. D. (2022). Clinical utility and acceptability of a whole-hospital, pro-active electronic paediatric early warning system (the DETECT study): A prospective e-survey of parents and health professionals.. PloS one, 17(9), e0273666. doi:10.1371/journal.pone.0273666
Parents' experiences and perceptions of the acceptability of a whole-hospital, pro-active electronic pediatric early warning system (the DETECT study): A qualitative interview study
Saron, H., Carter, B., Siner, S., Preston, J., Peak, M., Mehta, F., . . . Sefton, G. (2022). Parents' experiences and perceptions of the acceptability of a whole-hospital, pro-active electronic pediatric early warning system (the DETECT study): A qualitative interview study. FRONTIERS IN PEDIATRICS, 10. doi:10.3389/fped.2022.954738
Keeping patient and public partnership at the heart of medical technology development during Covid-19: examples of adaptive practice.
Sproson, L., Mills, N., Pryde, L., Adebajo, A., Coyle, D., Preston, J., . . . Lanfranchi, V. (2022). Keeping patient and public partnership at the heart of medical technology development during Covid-19: examples of adaptive practice.. Journal of medical engineering & technology, 46(6), 472-481. doi:10.1080/03091902.2022.2089258
Standardised data on initiatives-STARDIT: Beta version.
Nunn, J. S., Shafee, T., Chang, S., Stephens, R., Elliott, J., Oliver, S., . . . Thompson, C. (2022). Standardised data on initiatives-STARDIT: Beta version.. Research involvement and engagement, 8(1), 31. doi:10.1186/s40900-022-00363-9
Health professionals' initial experiences and perceptions of the acceptability of a whole-hospital, pro-active electronic paediatric early warning system (the DETECT study): a qualitative interview study
Carter, B., Saron, H., Siner, S., Preston, J., Peak, M., Mehta, F., . . . Carrol, E. D. (2022). Health professionals' initial experiences and perceptions of the acceptability of a whole-hospital, pro-active electronic paediatric early warning system (the DETECT study): a qualitative interview study. BMC PEDIATRICS, 22(1). doi:10.1186/s12887-022-03411-1
Biomarker-guided duration of Antibiotic Treatment in Children Hospitalised with confirmed or suspected bacterial infection (BATCH): protocol for a randomised controlled trial.
Waldron, C. -A., Thomas-Jones, E., Bernatoniene, J., Brookes-Howell, L., Faust, S. N., Harris, D., . . . Carrol, E. D. (2022). Biomarker-guided duration of Antibiotic Treatment in Children Hospitalised with confirmed or suspected bacterial infection (BATCH): protocol for a randomised controlled trial.. BMJ open, 12(1), e047490. doi:10.1136/bmjopen-2020-047490
Development, implementation and evaluation of an evidence-based paediatric early warning system improvement programme: the PUMA mixed methods study
Allen, D., Lloyd, A., Edwards, D., Hood, K., Huang, C., Hughes, J., . . . Roland, D. (2022). Development, implementation and evaluation of an evidence-based paediatric early warning system improvement programme: the PUMA mixed methods study. BMC HEALTH SERVICES RESEARCH, 22(1). doi:10.1186/s12913-021-07314-2
Development, implementation and evaluation of an early warning system improvement programme for children in hospital: the PUMA mixed-methods study
Allen, D., Lloyd, A., Edwards, D., Grant, A., Hood, K., Huang, C., . . . Roland, D. (2022). Development, implementation and evaluation of an early warning system improvement programme for children in hospital: the PUMA mixed-methods study.
Offer of a bandage versus rigid immobilisation in 4-to 15-year-olds with distal radius torus fractures: the FORCE equivalence RCT
Perry, D. C., Achten, J., Knight, R., Dutton, S. J., Dritsaki, M., Mason, J. M., . . . Costa, M. L. (2022). Offer of a bandage versus rigid immobilisation in 4-to 15-year-olds with distal radius torus fractures: the FORCE equivalence RCT. HEALTH TECHNOLOGY ASSESSMENT, 26(33), 1-+. doi:10.3310/BDNS6122
2021
Co-creation of practical “how-to guides” for patient engagement in key phases of medicines development—from theory to implementation
Feldman, D., Kruger, P., Delbecque, L., Duenas, A., Bernard-Poenaru, O., Wollenschneider, S., . . . Escudier, T. (2021). Co-creation of practical “how-to guides” for patient engagement in key phases of medicines development—from theory to implementation. Research Involvement and Engagement, 7(1). doi:10.1186/s40900-021-00294-x
Children's Preferences for Oral Dosage Forms and Their Involvement in Formulation Research via EPTRI (European Paediatric Translational Research Infrastructure)
Alessandrini, E., Brako, F., Scarpa, M., Lupo, M., Bonifazi, D., Pignataro, V., . . . Tuleu, C. (2021). Children's Preferences for Oral Dosage Forms and Their Involvement in Formulation Research via EPTRI (European Paediatric Translational Research Infrastructure). PHARMACEUTICS, 13(5). doi:10.3390/pharmaceutics13050730
Optimal outcome measures for a trial of not routinely measuring gastric residual volume in neonatal care: a mixed methods consensus process
Gale, C., Dorling, J., Arch, B., Woolfall, K., Deja, E., Roper, L., . . . Tume, L. (2021). Optimal outcome measures for a trial of not routinely measuring gastric residual volume in neonatal care: a mixed methods consensus process. ARCHIVES OF DISEASE IN CHILDHOOD-FETAL AND NEONATAL EDITION, 106(3), F292-F297. doi:10.1136/archdischild-2020-319469
Is a trial of no routine gastric residual volume monitoring to guide enteral feeding is possible in uk picus and nicus?
Tume, L., Woolfall, K., Deja, E., Roper, L., Valla, F., Gale, C., . . . Dorling, J. (n.d.). Is a trial of no routine gastric residual volume monitoring to guide enteral feeding is possible in uk picus and nicus?. In Pediatric Critical Care Medicine.
Can they stomach it? Parent and practitioner acceptability of a trial comparing gastric residual volume measurement versus no gastric residual volume in UK NNU and PICUs: a feasibility study
Deja, E., Roper, L., Tume, L. N., Dorling, J., Gale, C., Arch, B., . . . Woolfall, K. (2021). Can they stomach it? Parent and practitioner acceptability of a trial comparing gastric residual volume measurement versus no gastric residual volume in UK NNU and PICUs: a feasibility study. PILOT AND FEASIBILITY STUDIES, 7(1). doi:10.1186/s40814-021-00784-5
Procalcitonin, C-reactive protein, neutrophil gelatinase-associated lipocalin, resistin and the APTT waveform for the early diagnosis of serious bacterial infection and prediction of outcome in critically ill children.
Nielsen, M. J., Baines, P., Jennings, R., Siner, S., Kolamunnage-Dona, R., Newland, P., . . . Carrol, E. D. (2021). Procalcitonin, C-reactive protein, neutrophil gelatinase-associated lipocalin, resistin and the APTT waveform for the early diagnosis of serious bacterial infection and prediction of outcome in critically ill children.. PLoS One, 16(2), e0246027. doi:10.1371/journal.pone.0246027
Determining Optimal Outcome Measures in a Trial Investigating No Routine Gastric Residual Volume Measurement in Critically Ill Children
Tume, L. N., Arch, B., Woolfall, K., Roper, L., Deja, E., Jones, A. P., . . . Dorling, J. (n.d.). Determining Optimal Outcome Measures in a Trial Investigating No Routine Gastric Residual Volume Measurement in Critically Ill Children. Journal of Parenteral and Enteral Nutrition. doi:10.1002/jpen.1817
2020
How do we know what works? Evaluating data on the extent and impact of young people’s involvement in English health research
Brady, L. -M., & Preston, J. (n.d.). How do we know what works? Evaluating data on the extent and impact of young people’s involvement in English health research. Research for All, 4(2). doi:10.14324/rfa.04.2.05
Guidance on development and operation of Young Persons' Advisory Groups
Chan, W., Thurairajah, P., Butcher, N., Oosterwijk, C., Wever, K., Eichler, I., . . . Preston, J. (2020). Guidance on development and operation of Young Persons' Advisory Groups. ARCHIVES OF DISEASE IN CHILDHOOD, 105(9), 875-880. doi:10.1136/archdischild-2019-318517
Low-dose (0.01%) atropine eye-drops to reduce progression of myopia in children: a multicentre placebo-controlled randomised trial in the UK (CHAMP-UK)-study protocol
Azuara-Blanco, A., Logan, N., Strang, N., Saunders, K., Allen, P. M., Weir, R., . . . Clarke, M. (2020). Low-dose (0.01%) atropine eye-drops to reduce progression of myopia in children: a multicentre placebo-controlled randomised trial in the UK (CHAMP-UK)-study protocol. BRITISH JOURNAL OF OPHTHALMOLOGY, 104(7), 950-955. doi:10.1136/bjophthalmol-2019-314819
Pharmacovigilance Reports Received from Children and Young People, and Development of Information to Aid Future Reporting from this Age Group
Bhoombla, N., Preston, J., Ainsworth, J., Bird, H., Jadeja, M., King, C., & Hawcutt, D. B. (2020). Pharmacovigilance Reports Received from Children and Young People, and Development of Information to Aid Future Reporting from this Age Group. PEDIATRIC DRUGS, 22(3), 335-341. doi:10.1007/s40272-020-00391-6
Ensuring young voices are heard in core outcome set development: international workshops with 70 children and young people.
Sherratt, F. C., Bagley, H., Stones, S. R., Preston, J., Hall, N. J., Gorst, S. L., & Young, B. (2020). Ensuring young voices are heard in core outcome set development: international workshops with 70 children and young people.. Research involvement and engagement, 6, 19. doi:10.1186/s40900-020-00202-9
Routine gastric residual volume measurement to guide enteral feeding in mechanically ventilated infants and children: the GASTRIC feasibility study
Tume, L. N., Woolfall, K., Arch, B., Roper, L., Deja, E., Jones, A. P., . . . Dorling, J. (2020). Routine gastric residual volume measurement to guide enteral feeding in mechanically ventilated infants and children: the GASTRIC feasibility study. HEALTH TECHNOLOGY ASSESSMENT, 24(23), 1-+. doi:10.3310/hta24230
Patient and public involvement in a study of multimedia clinical trial information for children, young people and families
Sheridan, R., Preston, J., Stones, S., Ainsworth, S., Horton Taylor, D., Challinor, R., . . . Knapp, P. (n.d.). Patient and public involvement in a study of multimedia clinical trial information for children, young people and families. Research for All, 4(1). doi:10.18546/rfa.04.1.05
2019
Dynamic Electronic Tracking and Escalation to reduce Critical care Transfers (DETECT): the protocol for a stepped wedge mixed method study to explore the clinical effectiveness, clinical utility and cost-effectiveness of an electronic physiological surveillance system for use in children
Sefton, G., Carter, B., Lane, S., Peak, M., Mateus, C., Preston, J., . . . Carrol, E. D. (2019). Dynamic Electronic Tracking and Escalation to reduce Critical care Transfers (DETECT): the protocol for a stepped wedge mixed method study to explore the clinical effectiveness, clinical utility and cost-effectiveness of an electronic physiological surveillance system for use in children. BMC PEDIATRICS, 19(1). doi:10.1186/s12887-019-1745-7
Role of Patients and Parents in Pediatric Drug Development
Tsang, V. W. L., West, L., Woods, C., Koh, C. J., McCune, S., Mullin, T., . . . Thompson, C. (2019). Role of Patients and Parents in Pediatric Drug Development. THERAPEUTIC INNOVATION & REGULATORY SCIENCE, 53(5), 601-608. doi:10.1177/2168479018820875
How to navigate the ethical review of research
Davies, H. T., Phillips, B., Preston, J., & Stones, S. R. (2019). How to navigate the ethical review of research. ARCHIVES OF DISEASE IN CHILDHOOD, 104(7), 697-700. doi:10.1136/archdischild-2018-315120
Framework to help design and review research involving children
Phillips, B., Davies, H. T., Preston, J., & Stones, S. R. (2019). Framework to help design and review research involving children. ARCHIVES OF DISEASE IN CHILDHOOD, 104(6), 601-604. doi:10.1136/archdischild-2018-315119
How to involve children and young people in what is, after all, their research
Preston, J., Stones, S. R., Davies, H., Preston, J., & Phillips, B. (2019). How to involve children and young people in what is, after all, their research. ARCHIVES OF DISEASE IN CHILDHOOD, 104(5), 494-+. doi:10.1136/archdischild-2018-315118
Supporting children and young people when making decisions about joining clinical trials: Qualitative study to inform multimedia website development
Martin-Kerry, J. M., Knapp, P., Atkin, K., Bower, P., Watt, I., Stones, C., . . . Young, B. (2019). Supporting children and young people when making decisions about joining clinical trials: Qualitative study to inform multimedia website development. BMJ Open, 9(1). doi:10.1136/bmjopen-2018-023984_rfseq1
Supporting children and young people when making decisions about joining clinical trials: qualitative study to inform multimedia website development
Martin-Kerry, J. M., Knapp, P., Atkin, K., Bower, P., Watt, I., Stones, C., . . . Young, B. (2019). Supporting children and young people when making decisions about joining clinical trials: qualitative study to inform multimedia website development. BMJ OPEN, 9(1). doi:10.1136/bmjopen-2018-023984
Making research central to good paediatric practice
Davies, H. T., Phillips, B., Preston, J., & Stones, S. R. (2019). Making research central to good paediatric practice. ARCHIVES OF DISEASE IN CHILDHOOD, 104(4), 385-388. doi:10.1136/archdischild-2018-315117
2018
Involving children and young people in clinical research through the forum of a European Young Persons' Advisory Group: needs and challenges
Gaillard, S., Malik, S., Preston, J., Escalera, B. N., Dicks, P., Touil, N., . . . Kassai, B. (2018). Involving children and young people in clinical research through the forum of a European Young Persons' Advisory Group: needs and challenges. FUNDAMENTAL & CLINICAL PHARMACOLOGY, 32(4), 357-362. doi:10.1111/fcp.12360
A prospective, mixed-methods, before and after study to identify the evidence base for the core components of an effective Paediatric Early Warning System and the development of an implementation package containing those core recommendations for use in the UK: Paediatric early warning system - utilisation and mortality avoidance- the PUMA study protocol
Thomas-Jones, E., Lloyd, A., Roland, D., Sefton, G., Tume, L., Hood, K., . . . Powell, C. (2018). A prospective, mixed-methods, before and after study to identify the evidence base for the core components of an effective Paediatric Early Warning System and the development of an implementation package containing those core recommendations for use in the UK: Paediatric early warning system - utilisation and mortality avoidance- the PUMA study protocol. BMC PEDIATRICS, 18. doi:10.1186/s12887-018-1210-z
La writing: Strategies for improving assent forms for children and adolescent participation in health research
Yuill, D., Barron, R., & Preston, J. (2018). La writing: Strategies for improving assent forms for children and adolescent participation in health research. Medical Writing, 27(1), 51-54.
2017
NIHR Clinical Research Networks: what they do and how they help paediatric research
Lythgoe, H., Price, V., Poustie, V., Attar, S., Hawcutt, D., Preston, J., & Beresford, M. W. (2017). NIHR Clinical Research Networks: what they do and how they help paediatric research. ARCHIVES OF DISEASE IN CHILDHOOD, 102(8), 755-759. doi:10.1136/archdischild-2016-311057
Predicting Risk of Serious Bacterial Infections in Febrile Children in the Emergency Department
Irwin, A. D., Grant, A., Williams, R., Kolamunnage-Dona, R., Drew, R. J., Paulus, S., . . . Carrol, E. D. (2017). Predicting Risk of Serious Bacterial Infections in Febrile Children in the Emergency Department. Pediatrics, 140(2), 0. doi:10.1542/peds.2016-2853
Developing and evaluating multimedia information resources to improve engagement of children, adolescents, and their parents with trials (TRECA study): Study protocol for a series of linked randomised controlled trials
Martin-Kerry, J., Bower, P., Young, B., Graffy, J., Sheridan, R., Watt, I., . . . Knapp, P. (2017). Developing and evaluating multimedia information resources to improve engagement of children, adolescents, and their parents with trials (TRECA study): Study protocol for a series of linked randomised controlled trials. TRIALS, 18. doi:10.1186/s13063-017-1962-z
2016
Public and patient involvement in paediatric research
Bate, J., Ranasinghe, N., Ling, R., Preston, J., Nightingale, R., & Denegri, S. (2016). Public and patient involvement in paediatric research. ARCHIVES OF DISEASE IN CHILDHOOD-EDUCATION AND PRACTICE EDITION, 101(3), 158-161. doi:10.1136/archdischild-2015-309500
Parents' and young people's involvement in designing a trial of ventilator weaning
Tume, L. N., Preston, J., & Blackwood, B. (2016). Parents' and young people's involvement in designing a trial of ventilator weaning. NURSING IN CRITICAL CARE, 21(3), E10-E18. doi:10.1111/nicc.12221
2015
An evidence base to optimise methods for involving patient and public contributors in clinical trials: a mixed-methods study
Gamble, C., Dudley, L., Allam, A., Bell, P., Buck, D., Goodare, H., . . . Young, B. (2015). An evidence base to optimise methods for involving patient and public contributors in clinical trials: a mixed-methods study. Health Services and Delivery Research, 3(39). doi:10.3310/hsdr03390
What Difference Does Patient and Public Involvement Make and What Are Its Pathways to Impact? Qualitative Study of Patients and Researchers from a Cohort of Randomised Clinical Trials
Dudley, L., Gamble, C., Preston, J., Buck, D., The EPIC Patient Advisory Group., Hanley, B., . . . Young, B. (2015). What Difference Does Patient and Public Involvement Make and What Are Its Pathways to Impact? Qualitative Study of Patients and Researchers from a Cohort of Randomised Clinical Trials. PLOS ONE, 10(6). doi:10.1371/journal.pone.0128817
A little more conversation please? Qualitative study of researchers’ and patients’ interview accounts of training for patient and public involvement in clinical trials
Dudley, L., Gamble, C., Allam, A., Bell, P., Buck, D., Goodare, H., . . . Young, B. (2015). A little more conversation please? Qualitative study of researchers’ and patients’ interview accounts of training for patient and public involvement in clinical trials. Trials, 16. doi:10.1186/s13063-015-0667-4
iCAN: Providing a Voice for Children and Families in Pediatric Research
Thompson, H., Frederico, N., Smith, S. R., Chowdhury, M., Dicks, P., Preston, J., & Thompson, C. (2015). iCAN: Providing a Voice for Children and Families in Pediatric Research. THERAPEUTIC INNOVATION & REGULATORY SCIENCE, 49(5), 673-679. doi:10.1177/2168479015601344
2014
From plans to actions in patient and public involvement: qualitative study of documented plans and the accounts of researchers and patients sampled from a cohort of clinical trials
Buck, D., Gamble, C., Dudley, L., Preston, J., Hanley, B., Williamson, P., . . . The EPIC Patient Advisory Group. (2014). From plans to actions in patient and public involvement: qualitative study of documented plans and the accounts of researchers and patients sampled from a cohort of clinical trials. BMJ Open, 4(12). doi:10.1136/bmjopen-2014-006400
Guidance on clinical research involving infants, children and young people: an update for researchers and research ethics committees
Modi, N., Vohra, J., Preston, J., Elliott, C., Van't Hoff, W., Coad, J., . . . Greenough, A. (2014). Guidance on clinical research involving infants, children and young people: an update for researchers and research ethics committees. ARCHIVES OF DISEASE IN CHILDHOOD, 99(10), 887-891. doi:10.1136/archdischild-2014-306444
Patient and public involvement in the early stages of clinical trial development: a systematic cohort investigation
Gamble, C., Dudley, L., Allam, A., Bell, P., Goodare, H., Hanley, B., . . . Young, B. (2014). Patient and public involvement in the early stages of clinical trial development: a systematic cohort investigation. BMJ Open, 4(7). doi:10.1136/bmjopen-2014-005234
Exploring areas of consensus and conflict around values underpinning public involvement in health and social care research: a modified Delphi study
Snape, D., Kirkham, J., Preston, J., Popay, J., Britten, N., Collins, M., . . . Jacoby, A. (2014). Exploring areas of consensus and conflict around values underpinning public involvement in health and social care research: a modified Delphi study. BMJ OPEN, 4(1). doi:10.1136/bmjopen-2013-004217
2013
The Public Involvement Impact Assessment Framework Guidance
Poppay, J., Collins, M., Britten, N., Jacoby, A., Froggatt, K., Gibson, A., . . . Wyatt, K. (2013). The Public Involvement Impact Assessment Framework Guidance. WWW.
The Public Involvement Assessment Framework: Example Resources.
Popay, J., Collins, M., Britten, N., Jacoby, A., Froggatt, K., Gibson, A., . . . Wyatt, K. (2013). The Public Involvement Assessment Framework: Example Resources.. WWW.