Publications
Selected publications
- Providing multimedia information to children and young people increases recruitment to trials: pre-planned meta-analysis of SWATs (Journal article - 2023)
- Guidance to inform research recruitment processes for studies involving critically ill patients (Journal article - 2024)
- Learning from stakeholders to inform good practice guidance on consent to research in intensive care units: a mixed-methods study. (Journal article - 2022)
- Thinking Time, Shifting Goalposts and Ticking Time Bombs: Experiences of Waiting on the Gender Identity Development Service Waiting List. (Journal article - 2022)
- Enhancing patient and public contribution in health outcome selection during clinical guideline development: an ethnographic study. (Journal article - 2022)
- "Sometimes I think my frustration is the real issue": A qualitative study of parents' experiences of transformation after a parenting programme (Journal article - 2021)
- Informing the personalisation of interventions for parents of children with conduct problems: a qualitative study (Journal article - 2020)
- Challenges Conveying Clinical Equipoise and Exploring Patient Treatment Preferences in an Oncology Trial Comparing Active Monitoring with Radiotherapy (ROAM/EORTC 1308) (Journal article - 2020)
2024
Developing intervention fidelity strategies for a behaviour change intervention delivered in primary care dental practices: The RETURN Fidelity Strategy
Lowers, V., Young, B., & Harris, R. V. (2024). Developing intervention fidelity strategies for a behaviour change intervention delivered in primary care dental practices: The RETURN Fidelity Strategy. doi:10.21203/rs.3.rs-4925848/v1
HAP-FAST: a feasibility study incorporating qualitative, mechanistic and costing sub-studies alongside a randomised pilot trial comparing chest x-ray to low-dose CT scan and empirical antibiotics to antibiotics guided by the BIOFIRE® FILM ARRAY® pneumonia <i>plus</i> panel in adults with suspected non-ventilator-associated hospital-cquired pneumonia.
Shafiqa, N., Aston, S., Howard, A., Turtle, L., Abrams, S., Young, B., . . . Wootton, D. G. (2024). HAP-FAST: a feasibility study incorporating qualitative, mechanistic and costing sub-studies alongside a randomised pilot trial comparing chest x-ray to low-dose CT scan and empirical antibiotics to antibiotics guided by the BIOFIRE® FILM ARRAY® pneumonia <i>plus</i> panel in adults with suspected non-ventilator-associated hospital-cquired pneumonia.. BMJ open, 14(7), e088490. doi:10.1136/bmjopen-2024-088490
Experiences of core outcome set developers on including stakeholders from low- and middle-income countries: An online survey.
Karumbi, J., Gorst, S., Gathara, D., Young, B., & Williamson, P. (2024). Experiences of core outcome set developers on including stakeholders from low- and middle-income countries: An online survey.. PLOS global public health, 4(6), e0003365. doi:10.1371/journal.pgph.0003365
Consultations about randomised controlled trials are shorter and less in-depth for socioeconomically disadvantaged patients compared to socioeconomically advantaged patients: qualitative analysis across three trials.
Popa, M., Young, B., Rousseau, N., Cherry, M. G., Jenkins, I., Cloke, J., . . . Sherratt, F. C. (2024). Consultations about randomised controlled trials are shorter and less in-depth for socioeconomically disadvantaged patients compared to socioeconomically advantaged patients: qualitative analysis across three trials.. Trials, 25(1), 382. doi:10.1186/s13063-024-08216-4
Scoping review of fidelity strategies used in behaviour change trials delivered in primary dental care settings
177 ACTivity as medicine In Oncology for Head and Neck (ACTIOHN): Feasibility of recruitment and retention. Trial registration number ISRCTN82505455
Patterson, J., Cherry, M. G., Fisher, D., Levy, A., Rogers, S. N., Brooker, R., . . . Midgley, A. (2024). 177 ACTivity as medicine In Oncology for Head and Neck (ACTIOHN): Feasibility of recruitment and retention. Trial registration number ISRCTN82505455. Radiotherapy and Oncology, 192, S47-S49. doi:10.1016/s0167-8140(24)00447-x
Engaging children, young people, parents and health professionals in interviews: Using an interactive ranking exercise within the co-design of multimedia websites
Martin-Kerry, J., Higgins, S., Knapp, P., Liabo, K., & Young, B. (2022). Engaging children, young people, parents and health professionals in interviews: Using an interactive ranking exercise within the co-design of multimedia websites. JOURNAL OF CHILD HEALTH CARE. doi:10.1177/13674935221109684
Development of a head and neck lymphoedema specific quality of life tool: The Comprehensive Assessment of Lymphoedema Impact in the Head and Neck (CALI-HaN)
Starmer, H., Patterson, J., Young, B., Fleming, J., & Cherry, M. (2024). Development of a head and neck lymphoedema specific quality of life tool: The Comprehensive Assessment of Lymphoedema Impact in the Head and Neck (CALI-HaN). Head and Neck: journal for the sciences and specialities of the head and neck.
Guidance to inform research recruitment processes for studies involving critically ill patients
Woolfall, K., Paddock, K., Watkins, M., Kearney, A., Neville, K., Frith, L., . . . Young, B. (2023). Guidance to inform research recruitment processes for studies involving critically ill patients. JOURNAL OF THE INTENSIVE CARE SOCIETY. doi:10.1177/17511437231197293
Developing a measure of participant experience of trials: qualitative study and cognitive testing
Small, N., Planner, C., Gillies, K., Sanders, C., Turner, K., Young, B., . . . Bower, P. (2024). Developing a measure of participant experience of trials: qualitative study and cognitive testing. doi:10.12688/f1000research.138829.1
2023
To adopt or adapt an existing neonatal core outcome set in Kenya: a study protocol.
Karumbi, J., Gathara, D., Young, B., & Williamson, P. (2023). To adopt or adapt an existing neonatal core outcome set in Kenya: a study protocol.. Trials, 24(1), 806. doi:10.1186/s13063-023-07821-z
Awareness and experiences on core outcome set development and use amongst stakeholders from low- and middle- income countries: An online survey.
Karumbi, J., Gorst, S., Gathara, D., Young, B., & Williamson, P. (2023). Awareness and experiences on core outcome set development and use amongst stakeholders from low- and middle- income countries: An online survey.. PLOS global public health, 3(12), e0002574. doi:10.1371/journal.pgph.0002574
Bracing Adolescent Idiopathic Scoliosis (BASIS) study - night-time versus full-time bracing in adolescent idiopathic scoliosis: study protocol for a multicentre, randomized controlled trial.
Swaby, L., Perry, D. C., Walker, K., Hind, D., Mills, A., Jayasuriya, R., . . . Sloan, S. (2023). Bracing Adolescent Idiopathic Scoliosis (BASIS) study - night-time versus full-time bracing in adolescent idiopathic scoliosis: study protocol for a multicentre, randomized controlled trial.. Bone & joint open, 4(11), 873-880. doi:10.1302/2633-1462.411.bjo-2023-0128
Head and neck lymphedema and quality of life: the patient perspective.
Starmer, H. M., Cherry, M. G., Patterson, J., Fleming, J., & Young, B. (2023). Head and neck lymphedema and quality of life: the patient perspective.. Supportive care in cancer : official journal of the Multinational Association of Supportive Care in Cancer, 31(12), 696. doi:10.1007/s00520-023-08150-2
ACTivity as medicine In Oncology for Head and Neck (ACTIOHN): Protocol for a feasibility study investigating a patient-centred approach to exercise for people with head and neck cancer
Midgley, A., Levy, A., Rogers, S., Brooker, R., Bryant, V., Cherry, M., . . . Patterson, J. (2023). ACTivity as medicine In Oncology for Head and Neck (ACTIOHN): Protocol for a feasibility study investigating a patient-centred approach to exercise for people with head and neck cancer. PLoS One.
Consultations about randomised controlled trials are shorter and less in-depth for socio-economically disadvantaged patients compared to socioeconomically advantaged patients: qualitative analysis across three trials
Providing multimedia information to children and young people increases recruitment to trials: pre-planned meta-analysis of SWATs
Knapp, P., Moe-Byrne, T., Martin-Kerry, J., Sheridan, R., Roche, J., Coleman, E., . . . Ainsworth, J. (2023). Providing multimedia information to children and young people increases recruitment to trials: pre-planned meta-analysis of SWATs. BMC MEDICINE, 21(1). doi:10.1186/s12916-023-02936-1
Complex and alternate consent pathways in clinical trials: methodological and ethical challenges encountered by underserved groups and a call to action.
Russell, A. M., Shepherd, V., Woolfall, K., Young, B., Gillies, K., Volkmer, A., . . . Wade, J. (2023). Complex and alternate consent pathways in clinical trials: methodological and ethical challenges encountered by underserved groups and a call to action.. Trials, 24(1), 151. doi:10.1186/s13063-023-07159-6
Patient-centred outcomes following non-operative treatment or appendicectomy for uncomplicated acute appendicitis in children.
Hall, N. J., Sherratt, F. C., Eaton, S., Walker, E., Chorozoglou, M., Beasant, L., . . . Reading, I. (2023). Patient-centred outcomes following non-operative treatment or appendicectomy for uncomplicated acute appendicitis in children.. BMJ Paediatr Open, 7(1). doi:10.1136/bmjpo-2022-001673
Metacognitive beliefs predict test anxiety and examination performance
Huntley, C. D., Young, B., Tudur Smith, C., & Fisher, P. L. (n.d.). Metacognitive beliefs predict test anxiety and examination performance. Frontiers in Education, 8. doi:10.3389/feduc.2023.1051304
The effectiveness and acceptability of multimedia information when recruiting children and young people to trials: the TRECA meta-analysis of SWATs.
Knapp, P., Martin-Kerry, J., Moe-Byrne, T., Sheridan, R., Coleman, E., Roche, J., . . . Stones, C. (2023). The effectiveness and acceptability of multimedia information when recruiting children and young people to trials: the TRECA meta-analysis of SWATs.. Health and social care delivery research, 11(24), 1-112. doi:10.3310/htpm3841
2022
Learning from stakeholders to inform good practice guidance on consent to research in intensive care units: a mixed-methods study.
Paddock, K., Woolfall, K., Kearney, A., Pattison, N., Frith, L., Gamble, C., . . . Young, B. (2022). Learning from stakeholders to inform good practice guidance on consent to research in intensive care units: a mixed-methods study.. BMJ open, 12(11), e066149. doi:10.1136/bmjopen-2022-066149
Thinking Time, Shifting Goalposts and Ticking Time Bombs: Experiences of Waiting on the Gender Identity Development Service Waiting List.
McKay, K., Kennedy, E., Wright, T., & Young, B. (2022). Thinking Time, Shifting Goalposts and Ticking Time Bombs: Experiences of Waiting on the Gender Identity Development Service Waiting List.. International journal of environmental research and public health, 19(21), 13883. doi:10.3390/ijerph192113883
Understanding the perspectives of recruiters is key to improving randomised controlled trial enrolment: a qualitative evidence synthesis
Farrar, N., Elliott, D., Houghton, C., Jepson, M., Mills, N., Paramasivan, S., . . . Rooshenas, L. (2022). Understanding the perspectives of recruiters is key to improving randomised controlled trial enrolment: a qualitative evidence synthesis. TRIALS, 23(1). doi:10.1186/s13063-022-06818-4
Adapting a social network intervention for use in secondary mental health services using a collaborative approach with service users, carers/supporters and health professionals in the United Kingdom
Brooks, H., Devereux-Fitzgerald, A., Richmond, L., Caton, N., Newton, A., Downs, J., . . . Rogers, A. (2022). Adapting a social network intervention for use in secondary mental health services using a collaborative approach with service users, carers/supporters and health professionals in the United Kingdom. BMC HEALTH SERVICES RESEARCH, 22(1). doi:10.1186/s12913-022-08521-1
CoV-Sym: The development of a psychometrically validated patient reported outcome measure for COVID-19
Lythgoe, C., Rowe, A., Aiyegbusi, O. L., Chambers, L., Sherratt, F., Wood, J., . . . Wootton, D. (2022). CoV-Sym: The development of a psychometrically validated patient reported outcome measure for COVID-19. In EUROPEAN RESPIRATORY JOURNAL Vol. 60. doi:10.1183/13993003.congress-2022.3312
Patient and health practitioner views and experiences of a cancer trial before and during COVID-19: qualitative study
Sherratt, F. C., Fisher, P., Mathieson, A., Cherry, M. G., Pettitt, A. R., & Young, B. (2022). Patient and health practitioner views and experiences of a cancer trial before and during COVID-19: qualitative study. TRIALS, 23(1). doi:10.1186/s13063-022-06453-z
Assessment of measures of head and neck lymphedema following head and neck cancer treatment: a systematic review
Starmer, H., Cherry, M., Patterson, J., Young, B., & Fleming, J. (2022). Assessment of measures of head and neck lymphedema following head and neck cancer treatment: a systematic review. Lymphatic Research and Biology. doi:10.1089/lrb.2021.0100
Assessing the effectiveness of social network interventions for adults with a diagnosis of mental health problems: a systematic review and narrative synthesis of impact
Brooks, H., Devereux-Fitzgerald, A., Richmond, L., Bee, P., Lovell, K., Caton, N., . . . Rogers, A. (n.d.). Assessing the effectiveness of social network interventions for adults with a diagnosis of mental health problems: a systematic review and narrative synthesis of impact. Social Psychiatry and Psychiatric Epidemiology. doi:10.1007/s00127-022-02242-w
The development of theory-informed participant-centred interventions to maximise participant retention in randomised controlled trials
Newlands, R., Duncan, E., Treweek, S., Elliott, J., Presseau, J., Bower, P., . . . Gillies, K. (2022). The development of theory-informed participant-centred interventions to maximise participant retention in randomised controlled trials. Trials, 23(1). doi:10.1186/s13063-022-06218-8
In-depth qualitative interviews identified barriers and facilitators that influenced chief investigators’ use of core outcome sets in randomised controlled trials
Hughes, K. L., Williamson, P. R., & Young, B. (2022). In-depth qualitative interviews identified barriers and facilitators that influenced chief investigators’ use of core outcome sets in randomised controlled trials. Journal of Clinical Epidemiology, 144, 111-120. doi:10.1016/j.jclinepi.2021.12.004
Enhancing patient and public contribution in health outcome selection during clinical guideline development: an ethnographic study.
Biggane, A. M., Young, B., Williamson, P. R., Whittingham, E., & Cooper, J. (2022). Enhancing patient and public contribution in health outcome selection during clinical guideline development: an ethnographic study.. BMC health services research, 22(1), 361. doi:10.1186/s12913-022-07736-6
DEVELOPMENT OF THE ANTICHOLINERGIC MEDICATION INDEX (ACMI)
Best, K., Alderson, S., Alldred, D., Bonnet, L., Buchan, I., Butters, O., . . . Clegg, A. (2022). DEVELOPMENT OF THE ANTICHOLINERGIC MEDICATION INDEX (ACMI). In AGE AND AGEING Vol. 51. doi:10.1093/ageing/afac035.825
Assessing metacognitive beliefs in test anxiety: Psychometric properties of the metacognitions questionnaire, 30 (MCQ-30) among university students
Huntley, C. D., Young, B., Smith, C. T., Jha, V., & Fisher, P. L. (2022). Assessing metacognitive beliefs in test anxiety: Psychometric properties of the metacognitions questionnaire, 30 (MCQ-30) among university students. CURRENT PSYCHOLOGY, 41(3), 1425-1433. doi:10.1007/s12144-020-00662-y
Patients' Perspectives on Transforming Clinical Trial Participation: Large Online Vignette-based Survey.
Nguyen, V. T., Ravaud, P., Tran, V. T., Young, B., & Boutron, I. (2022). Patients' Perspectives on Transforming Clinical Trial Participation: Large Online Vignette-based Survey.. Journal of medical Internet research, 24(2), e29691. doi:10.2196/29691
Testing times: the association of intolerance of uncertainty and metacognitive beliefs to test anxiety in college students
Huntley, C., Young, B., Tudur Smith, C., Jha, V., & Fisher, P. (2022). Testing times: the association of intolerance of uncertainty and metacognitive beliefs to test anxiety in college students. BMC PSYCHOLOGY, 10(1). doi:10.1186/s40359-021-00710-7
2021
Heterogeneity in outcome assessment for inflammatory bowel disease in routine clinical practice: a mixed-methods study in a sample of English hospitals
Razanskaite, V., Kallis, C., Young, B., Williamson, P. R., & Bodger, K. (2021). Heterogeneity in outcome assessment for inflammatory bowel disease in routine clinical practice: a mixed-methods study in a sample of English hospitals. BMJ OPEN, 11(12). doi:10.1136/bmjopen-2021-056413
“It is good to have a target in mind”: Qualitative views of patients and parents informing a treat to target clinical trial in JSLE
Smith, E. M. D., Gorst, S. L., Al-Abadi, E., Hawley, D. P., Leone, V., Pilkington, C., . . . Young, B. (n.d.). “It is good to have a target in mind”: Qualitative views of patients and parents informing a treat to target clinical trial in JSLE. Rheumatology. doi:10.1093/rheumatology/keab173
Longitudinal Outcomes of Gender Identity in Children (LOGIC): study protocol for a retrospective analysis of the characteristics and outcomes of children referred to specialist gender services in the UK and the Netherlands
Kennedy, E., Lane, C., Stynes, H., Ranieri, V., Spinner, L., Carmichael, P., . . . King, M. (2021). Longitudinal Outcomes of Gender Identity in Children (LOGIC): study protocol for a retrospective analysis of the characteristics and outcomes of children referred to specialist gender services in the UK and the Netherlands. BMJ OPEN, 11(11). doi:10.1136/bmjopen-2021-054895
BARRIERS AND FACILITATORS TO CLINICAL ACTIVITY INDICES FOR IBD IN ROUTINE PRACTICE: A QUALITATIVE STUDY
Razanskaite, V., Young, B., Williamson, P., & Bodger, K. (2021). BARRIERS AND FACILITATORS TO CLINICAL ACTIVITY INDICES FOR IBD IN ROUTINE PRACTICE: A QUALITATIVE STUDY. In GUT Vol. 70 (pp. A86-A87). doi:10.1136/gutjnl-2021-BSG.158
“It shows we felt safe because a few of us had tears”: Exploring how perceptions of the group space can influence experiences of parenting programmes
McKay, K., Kennedy, E., Ranieri, V., & Young, B. (2021). “It shows we felt safe because a few of us had tears”: Exploring how perceptions of the group space can influence experiences of parenting programmes. Emotion, Space and Society, 41, 100837. doi:10.1016/j.emospa.2021.100837
Recruiters' perspectives and experiences of trial recruitment processes: a qualitative evidence synthesis protocol
Farrar, N., Elliott, D., Jepson, M., Houghton, C., Young, B., Donovan, J., & Rooshenas, L. (2021). Recruiters' perspectives and experiences of trial recruitment processes: a qualitative evidence synthesis protocol. BMJ OPEN, 11(10). doi:10.1136/bmjopen-2020-045233
Inclusion of participants from low-income and middle-income countries in core outcome sets development: a systematic review
Karumbi, J., Gorst, S. L., Gathara, D., Gargon, E., Young, B., & Williamson, P. R. (2021). Inclusion of participants from low-income and middle-income countries in core outcome sets development: a systematic review. BMJ OPEN, 11(10). doi:10.1136/bmjopen-2021-049981
The Development of Theory-Informed Participant-Centred Interventions to Maximise Participant Retention in Randomised Controlled Trials
"Sometimes I think my frustration is the real issue": A qualitative study of parents' experiences of transformation after a parenting programme
McKay, K., Kennedy, E., & Young, B. (2021). "Sometimes I think my frustration is the real issue": A qualitative study of parents' experiences of transformation after a parenting programme. PLOS ONE, 16(10). doi:10.1371/journal.pone.0258528
Strategies to enhance recruitment and consent to intensive care studies: a qualitative study with researchers and patient-public involvement contributors
Paddock, K., Woolfall, K., Frith, L., Watkins, M., Gamble, C., Welters, I., & Young, B. (2021). Strategies to enhance recruitment and consent to intensive care studies: a qualitative study with researchers and patient-public involvement contributors. BMJ OPEN, 11(9). doi:10.1136/bmjopen-2020-048193
Longitudinal Outcomes of Gender Identity in Children (LOGIC): protocol for a prospective longitudinal cohort study of children referred to the UK gender identity development service
Kennedy, E., Spinner, L., Lane, C., Stynes, H., Ranieri, V., Carmichael, P., . . . King, M. (2021). Longitudinal Outcomes of Gender Identity in Children (LOGIC): protocol for a prospective longitudinal cohort study of children referred to the UK gender identity development service. BMJ OPEN, 11(9). doi:10.1136/bmjopen-2020-045628
Patient participation in Delphi surveys to develop core outcome sets: systematic review
Barrington, H., Young, B., & Williamson, P. R. (2021). Patient participation in Delphi surveys to develop core outcome sets: systematic review. BMJ OPEN, 11(9). doi:10.1136/bmjopen-2021-051066
Why trials lose participants: A multitrial investigation of participants perspectives using the theoretical domains framework
Newlands, R., Duncan, E., Presseau, J., Treweek, S., Lawrie, L., Bower, P., . . . Gillies, K. (2021). Why trials lose participants: A multitrial investigation of participants perspectives using the theoretical domains framework. JOURNAL OF CLINICAL EPIDEMIOLOGY, 137, 1-13. doi:10.1016/j.jclinepi.2021.03.007
CONservative TReatment of Appendicitis in Children: a randomised controlled feasibility Trial (CONTRACT)
Hall, N. J., Eaton, S., Sherratt, F. C., Reading, I., Walker, E., Chorozoglou, M., . . . Blazeby, J. M. (2021). CONservative TReatment of Appendicitis in Children: a randomised controlled feasibility Trial (CONTRACT). ARCHIVES OF DISEASE IN CHILDHOOD, 106(8), 764-773. doi:10.1136/archdischild-2020-320746
SAVER: sodium valproate for the epigenetic reprogramming of high-risk oral epithelial dysplasia-a phase II randomised control trial study protocol
McCarthy, C., Sacco, J., Fedele, S., Ho, M., Porter, S., Liloglou, T., . . . Shaw, R. (2021). SAVER: sodium valproate for the epigenetic reprogramming of high-risk oral epithelial dysplasia-a phase II randomised control trial study protocol. TRIALS, 22(1). doi:10.1186/s13063-021-05373-8
Conservative treatment for uncomplicated appendicitis in children: the CONTRACT feasibility study, including feasibility RCT
Hall, N. J., Sherratt, F. C., Eaton, S., Reading, I., Walker, E., Chorozoglou, M., . . . Young, B. (2021). Conservative treatment for uncomplicated appendicitis in children: the CONTRACT feasibility study, including feasibility RCT. HEALTH TECHNOLOGY ASSESSMENT, 25(10), 1-+. doi:10.3310/hta25100
HETEROGENEITY IN OUTCOME ASSESSMENT FOR IBD IN ROUTINE PRACTICE: A MIXED-METHODS STUDY OF ENGLISH HOSPITALS
Razanskaite, V., Kallis, C., Young, B., Williamson, P., & Bodger, K. (2021). HETEROGENEITY IN OUTCOME ASSESSMENT FOR IBD IN ROUTINE PRACTICE: A MIXED-METHODS STUDY OF ENGLISH HOSPITALS. In GUT Vol. 70 (pp. A114-A115). doi:10.1136/gutjnl-2020-bsgcampus.215
2020
Informing the personalisation of interventions for parents of children with conduct problems: a qualitative study
McKay, K., Kennedy, E., Senior, R., Scott, S., Hill, J., Doolan, M., . . . Young, B. (2020). Informing the personalisation of interventions for parents of children with conduct problems: a qualitative study. BMC PSYCHIATRY, 20(1). doi:10.1186/s12888-020-02917-1
Controversy and Debate Series on Core Outcome Sets. Paper 4: Debate on Paper 1 from the perspective of COMET [Core Outcome Measures in Effectiveness Trials]
Williamson, P. R., Blazeby, J. M., Brookes, S. T., Clarke, M., Terwee, C. B., & Young, B. (2020). Controversy and Debate Series on Core Outcome Sets. Paper 4: Debate on Paper 1 from the perspective of COMET [Core Outcome Measures in Effectiveness Trials]. JOURNAL OF CLINICAL EPIDEMIOLOGY, 125, 222-224. doi:10.1016/j.jclinepi.2020.05.014
Core outcome set for uncomplicated acute appendicitis in children and young people
Sherratt, F. C., Allin, B. S. R., Kirkham, J. J., Walker, E., Young, B., Wood, W., . . . Hall, N. J. (2020). Core outcome set for uncomplicated acute appendicitis in children and young people. BRITISH JOURNAL OF SURGERY, 107(8), 1013-1022. doi:10.1002/bjs.11508
Ensuring young voices are heard in core outcome set development: international workshops with 70 children and young people.
Sherratt, F. C., Bagley, H., Stones, S. R., Preston, J., Hall, N. J., Gorst, S. L., & Young, B. (2020). Ensuring young voices are heard in core outcome set development: international workshops with 70 children and young people.. Research involvement and engagement, 6, 19. doi:10.1186/s40900-020-00202-9
Su1832 USE OF CLINICAL INFLAMMATORY BOWEL DISEASE ACTIVITY INSTRUMENTS IN REAL-WORLD PRACTICE: A MIXED METHODS EVALUATION
Razanskaite, V., Williamson, P., Young, B., & Bodger, K. (2020). Su1832 USE OF CLINICAL INFLAMMATORY BOWEL DISEASE ACTIVITY INSTRUMENTS IN REAL-WORLD PRACTICE: A MIXED METHODS EVALUATION. Gastroenterology, 158(6). doi:10.1016/s0016-5085(20)32360-x
Challenges Conveying Clinical Equipoise and Exploring Patient Treatment Preferences in an Oncology Trial Comparing Active Monitoring with Radiotherapy (ROAM/EORTC 1308)
Sherratt, F. C., Brown, S. L., Haylock, B. J., Francis, P., Hickey, H., Gamble, C., . . . Young, B. (2020). Challenges Conveying Clinical Equipoise and Exploring Patient Treatment Preferences in an Oncology Trial Comparing Active Monitoring with Radiotherapy (ROAM/EORTC 1308). ONCOLOGIST, 25(4), E691-E700. doi:10.1634/theoncologist.2019-0571
Enhancing communication, informed consent and recruitment in a paediatric urgent care surgical trial: a qualitative study
Sherratt, F. C., Beasant, L., Crawley, E. M., Hall, N. J., & Young, B. (2020). Enhancing communication, informed consent and recruitment in a paediatric urgent care surgical trial: a qualitative study. BMC Pediatrics, 20. doi:10.1186/s12887-020-02040-w
Ketogenic diets as an adjuvant therapy for glioblastoma (KEATING): a randomized, mixed methods, feasibility study
Martin-McGill, K. J., Marson, A. G., Tudur Smith, C., Young, B., Mills, S. J., Cherry, M. G., & Jenkinson, M. D. (n.d.). Ketogenic diets as an adjuvant therapy for glioblastoma (KEATING): a randomized, mixed methods, feasibility study. Journal of Neuro-Oncology. doi:10.1007/s11060-020-03417-8
The research burden of randomized controlled trial participation: a systematic thematic synthesis of qualitative evidence
Naidoo, N., Nguyen, V. T., Ravaud, P., Young, B., Amiel, P., Schante, D., . . . Boutron, I. (2020). The research burden of randomized controlled trial participation: a systematic thematic synthesis of qualitative evidence. BMC MEDICINE, 18(1). doi:10.1186/s12916-019-1476-5
P178 Variation in assessment of outcomes for inflammatory bowel disease in routine clinical practice: a mixed-methods study
Razanskaite, V., Williamson, P., Young, B., & Bodger, K. (2020). P178 Variation in assessment of outcomes for inflammatory bowel disease in routine clinical practice: a mixed-methods study. Journal of Crohn's and Colitis, 14(Supplement_1), S227. doi:10.1093/ecco-jcc/jjz203.307
A passage to adulthood : ethnographic perspectives on transitional care for adolescents with epilepsy and a comorbid learning disability
Smith Rigby, S. -J. (2020). A passage to adulthood : ethnographic perspectives on transitional care for adolescents with epilepsy and a comorbid learning disability.
Different corticosteroid induction regimens in children and young people with juvenile idiopathic arthritis: the SIRJIA mixed-methods feasibility study.
Jones, A. P., Clayton, D., Nkhoma, G., Sherratt, F. C., Peak, M., Stones, S. R., . . . Baildam, E. M. (2020). Different corticosteroid induction regimens in children and young people with juvenile idiopathic arthritis: the SIRJIA mixed-methods feasibility study.. Health Technology Assessment, 24(36), 1-152. doi:10.3310/hta24360
USE OF CLINICAL INFLAMMATORY BOWEL DISEASE ACTIVITY INSTRUMENTS IN REAL-WORLD PRACTICE: A MIXED METHODS EVALUATION
Razanskaite, V., Williamson, P., Young, B., & Bodger, K. (2020). USE OF CLINICAL INFLAMMATORY BOWEL DISEASE ACTIVITY INSTRUMENTS IN REAL-WORLD PRACTICE: A MIXED METHODS EVALUATION. In GASTROENTEROLOGY Vol. 158 (pp. S666-S667). Retrieved from https://www.webofscience.com/
Uncertainty and test anxiety: Psychometric properties of the Intolerance of Uncertainty Scale-12 (IUS-12) among university students
Huntley, C. D., Young, B., Smith, C. T., & Fisher, P. L. (2020). Uncertainty and test anxiety: Psychometric properties of the Intolerance of Uncertainty Scale-12 (IUS-12) among university students. INTERNATIONAL JOURNAL OF EDUCATIONAL RESEARCH, 104. doi:10.1016/j.ijer.2020.101672
Variation in assessment of outcomes for inflammatory bowel disease in routine clinical practice: a mixed-methods study
Razanskaite, V., Williamson, P., Young, B., & Bodger, K. (2020). Variation in assessment of outcomes for inflammatory bowel disease in routine clinical practice: a mixed-methods study. In JOURNAL OF CROHNS & COLITIS Vol. 14 (pp. S227). Retrieved from https://www.webofscience.com/
2019
Integrating quantitative and qualitative data and findings when undertaking randomised controlled trials.
Richards, D. A., Bazeley, P., Borglin, G., Craig, P., Emsley, R., Frost, J., . . . O'Cathain, A. (2019). Integrating quantitative and qualitative data and findings when undertaking randomised controlled trials.. BMJ open, 9(11), e032081. doi:10.1136/bmjopen-2019-032081
Participating in core outcome set development via Delphi surveys: qualitative interviews provide pointers to inform guidance
Biggane, A. M., Williamson, P. R., Ravaud, P., & Young, B. (2019). Participating in core outcome set development via Delphi surveys: qualitative interviews provide pointers to inform guidance. BMJ OPEN, 9(11). doi:10.1136/bmjopen-2019-032338
KETOGENIC DIETS AS AN ADJUVANT THERAPY IN GLIOBLASTOMA (KEATING): A MIXED METHODS RANDOMISED FEASIBILITY STUDY
Martin-McGill, K., Cherry, G., Marson, A., Smith, C. T., Young, B., & Jenkinson, M. (2019). KETOGENIC DIETS AS AN ADJUVANT THERAPY IN GLIOBLASTOMA (KEATING): A MIXED METHODS RANDOMISED FEASIBILITY STUDY. In NEURO-ONCOLOGY Vol. 21 (pp. 10). doi:10.1093/neuonc/noz167.043
Exploring patient treatment preferences enhances trial recruitment, so why do trial recruiters often avoid doing it?
Sherratt, F. C., Beasant, L., Crawley, E., Hall, N. J., Francis, P., Hickey, H., . . . Young, B. (2019). Exploring patient treatment preferences enhances trial recruitment, so why do trial recruiters often avoid doing it?. In TRIALS Vol. 20. Retrieved from https://www.webofscience.com/
Ketogenic diets as an adjuvant therapy in glioblastoma (KEATING): A mixed methods randomised feasibility study
Martin-McGill, K., Cherry, G., Marson, A., Tudur Smith, C., Young, B., & Jenkinson, M. (2019). Ketogenic diets as an adjuvant therapy in glioblastoma (KEATING): A mixed methods randomised feasibility study. Neuro-oncology, 21(Suppl 4), iv10.
P07 Identifying the primary outcome measure and protocol components for a prospective feasibility study of corticosteroid regimens for CYP with JIA using consensus methods with young people, families and professionals
Stones, S. R., Bagley, H., Beresford, M. W., Jones, A., McErlane, F., Moitt, T., . . . Baildam, E. M. (2019). P07 Identifying the primary outcome measure and protocol components for a prospective feasibility study of corticosteroid regimens for CYP with JIA using consensus methods with young people, families and professionals. Rheumatology, 58(Supplement_4). doi:10.1093/rheumatology/kez415.003
How could we know if communication skills training needed no more evaluation? The case for rigour in research design
Salmon, P., & Young, B. (2019). How could we know if communication skills training needed no more evaluation? The case for rigour in research design. PATIENT EDUCATION AND COUNSELING, 102(8), 1401-1403. doi:10.1016/j.pec.2019.05.026
Overcoming Barriers to Mobilizing Collective Intelligence in Research: Qualitative Study of Researchers With Experience of Collective Intelligence
Van, T. N., Young, B., Ravaud, P., Naidoo, N., Benchoufi, M., & Boutron, I. (2019). Overcoming Barriers to Mobilizing Collective Intelligence in Research: Qualitative Study of Researchers With Experience of Collective Intelligence. JOURNAL OF MEDICAL INTERNET RESEARCH, 21(7). doi:10.2196/13792
Trials need participants but not their feedback? A scoping review of published papers on the measurement of participant experience of taking part in clinical trials
Planner, C., Bower, P., Donnelly, A., Gillies, K., Turner, K., & Young, B. (2019). Trials need participants but not their feedback? A scoping review of published papers on the measurement of participant experience of taking part in clinical trials. TRIALS, 20. doi:10.1186/s13063-019-3444-y
A NATIONAL SURVEY OF CLINICAL PRACTICE OF CORTICOSTEROID USE IN NEWLY DIAGNOSED OR FLARING CASES OF JUVENILE IDIOPATHIC ARTHRITIS ACROSS THE UK
Baildam, E., Jones, A., Clayton, D., Nkoma, G., Peak, M., Ramanan, A., . . . Beresford, M. (2019). A NATIONAL SURVEY OF CLINICAL PRACTICE OF CORTICOSTEROID USE IN NEWLY DIAGNOSED OR FLARING CASES OF JUVENILE IDIOPATHIC ARTHRITIS ACROSS THE UK. In ANNALS OF THE RHEUMATIC DISEASES Vol. 78 (pp. 1934). doi:10.1136/annrheumdis-2019-eular.6751
A scoping review provided a framework for new ways of doing research through mobilizing collective intelligence
Van, T. N., Benchoufi, M., Young, B., Ghosn, L., Ravaud, P., & Boutron, I. (2019). A scoping review provided a framework for new ways of doing research through mobilizing collective intelligence. JOURNAL OF CLINICAL EPIDEMIOLOGY, 110, 1-11. doi:10.1016/j.jclinepi.2019.02.007
IDENTIFYING THE PRIMARY OUTCOME MEASURE AND PROTOCOL COMPONENTS FOR A PROSPECTIVE FEASIBILITY STUDY OF CORTICOSTEROID REGIMENS FOR CHILDREN AND YOUNG PEOPLE WITH JUVENILE IDIOPATHIC ARTHRITIS USING CONSENSUS METHODS WITH YOUNG PEOPLE, FAMILIES AND PROFESSIONALS
Stones, S., Bagley, H., Jones, A., Mcerlane, F., Moitt, T., Nkhoma, G., . . . Baildam, E. (2019). IDENTIFYING THE PRIMARY OUTCOME MEASURE AND PROTOCOL COMPONENTS FOR A PROSPECTIVE FEASIBILITY STUDY OF CORTICOSTEROID REGIMENS FOR CHILDREN AND YOUNG PEOPLE WITH JUVENILE IDIOPATHIC ARTHRITIS USING CONSENSUS METHODS WITH YOUNG PEOPLE, FAMILIES AND PROFESSIONALS. In ANNALS OF THE RHEUMATIC DISEASES Vol. 78 (pp. 1934-1935). doi:10.1136/annrheumdis-2019-eular.1799
Treatment preference and recruitment to pediatric RCTs: A systematic review
Beasant, L., Brigden, A., Parslow, R. M., Apperley, H., Keep, T., Northam, A., . . . Crawley, E. (2019). Treatment preference and recruitment to pediatric RCTs: A systematic review. Contemporary Clinical Trials Communications, 14. doi:10.1016/j.conctc.2019.100335
VARIATION IN ASSESSMENT OF OUTCOMES FOR IBD IN ROUTINE CLINICAL PRACTICE: AN ETHNOGRAPHIC STUDY
Razanskaite, V., Young, B., Williamson, P., & Bodger, K. (2019). VARIATION IN ASSESSMENT OF OUTCOMES FOR IBD IN ROUTINE CLINICAL PRACTICE: AN ETHNOGRAPHIC STUDY. In GUT Vol. 68 (pp. A91-A92). doi:10.1136/gutjnl-2019-BSGAbstracts.174
The efficacy of interventions for test-anxious university students: A meta-analysis of randomized controlled trials
Huntley, C. D., Young, B., Temple, J., Longworth, M., Smith, C. T., Jha, V., & Fisher, P. L. (2019). The efficacy of interventions for test-anxious university students: A meta-analysis of randomized controlled trials. JOURNAL OF ANXIETY DISORDERS, 63, 36-50. doi:10.1016/j.janxdis.2019.01.007
Incorporating Patients' Perspectives into the Initial Stages of Core Outcome Set Development: A Rapid Review of Qualitative Studies of Type 2 Diabetes
Gorst, S. L., Young, B., Williamson, P. R., Wilding, J. P. H., & Harman, N. (2019). Incorporating Patients' Perspectives into the Initial Stages of Core Outcome Set Development: A Rapid Review of Qualitative Studies of Type 2 Diabetes. BMJ Open Diabetes Research and Care.
Overcoming Barriers to Mobilizing Collective Intelligence in Research: Qualitative Study of Researchers With Experience of Collective Intelligence (Preprint)
Nguyen, V. T., Young, B., Ravaud, P., Naidoo, N., Benchoufi, M., & Boutron, I. (2019). Overcoming Barriers to Mobilizing Collective Intelligence in Research: Qualitative Study of Researchers With Experience of Collective Intelligence (Preprint). doi:10.2196/preprints.13792
Supporting children and young people when making decisions about joining clinical trials: Qualitative study to inform multimedia website development
Martin-Kerry, J. M., Knapp, P., Atkin, K., Bower, P., Watt, I., Stones, C., . . . Young, B. (2019). Supporting children and young people when making decisions about joining clinical trials: Qualitative study to inform multimedia website development. BMJ Open, 9(1). doi:10.1136/bmjopen-2018-023984_rfseq1
A national survey of clinical practice of corticosteroid use in newly diagnosed or flaring cases of juvenile idiopathic arthritis across the UK
Jones, A., Clayton, D., Nkhoma, G., Sherratt, F., Peak, M., Ramanan, A., . . . Baildam, E. (2019). A national survey of clinical practice of corticosteroid use in newly diagnosed or flaring cases of juvenile idiopathic arthritis across the UK. In RHEUMATOLOGY Vol. 58 (pp. 7). Retrieved from https://www.webofscience.com/
Agreeing outcomes that matter to patients - co-production of an animation to explain core outcome sets
Bagley, H., Gorst, S., Humphreys, R., Craven, R., Vial, C., Williamson, P. R., . . . Gargon, E. (2019). Agreeing outcomes that matter to patients - co-production of an animation to explain core outcome sets. In TRIALS Vol. 20. Retrieved from https://www.webofscience.com/
Assessment of outcomes for inflammatory bowel disease in routine clinical practice: an ethnographic study
Razanskaite, V., Williamson, P., Young, B., & Bodger, K. (2019). Assessment of outcomes for inflammatory bowel disease in routine clinical practice: an ethnographic study. In TRIALS Vol. 20. Retrieved from https://www.webofscience.com/
Developing a measure of participant experience in randomised trials: qualitative study of trial participant and professional perspectives
Small, N., Planner, C., Donnelly, A., Sanders, C., Gillies, K., Turner, K., . . . Bower, P. (2019). Developing a measure of participant experience in randomised trials: qualitative study of trial participant and professional perspectives. In TRIALS Vol. 20. Retrieved from https://www.webofscience.com/
Development of participant-centred interventions to enhance retention in randomised controlled trials: a theory-informed study
Newlands, R., Treweek, S., Presseau, J., Duncan, E., Bower, P., Elliott, J., . . . Gillies, K. (2019). Development of participant-centred interventions to enhance retention in randomised controlled trials: a theory-informed study. In TRIALS Vol. 20. Retrieved from https://www.webofscience.com/
Exploring the barriers and facilitators to core outcome set (COS) uptake: assessing the impact of a funder's recommendation to use COS followed by qualitative interviews with clinical trialists
Hughes, K. L., Young, B., Clarke, M., Kirkham, J., & Williamson, P. R. (2019). Exploring the barriers and facilitators to core outcome set (COS) uptake: assessing the impact of a funder's recommendation to use COS followed by qualitative interviews with clinical trialists. In TRIALS Vol. 20. Retrieved from https://www.webofscience.com/
Identifying the primary outcome measure and protocol components for a prospective feasibility study of corticosteroid regimens for CYP with JIA using consensus methods with young people, families and professionals
Stones, S. R., Bagley, H., Beresford, M. W., Jones, A., McErlane, F., Moitt, T., . . . Baildam, E. M. (2019). Identifying the primary outcome measure and protocol components for a prospective feasibility study of corticosteroid regimens for CYP with JIA using consensus methods with young people, families and professionals. In RHEUMATOLOGY Vol. 58. Retrieved from https://www.webofscience.com/
Recruitment observed and recruitment experienced - exploring the differences: qualitative study
Farrar, N., Donovan, J., Elliott, D., Jepson, M., Rooshenas, L., & Young, B. (2019). Recruitment observed and recruitment experienced - exploring the differences: qualitative study. In TRIALS Vol. 20. Retrieved from https://www.webofscience.com/
Successfully optimising trial recruitment via embedded qualitative studies: what's different about paediatric surgical trials in urgent care?
Young, B., Sherratt, F., Beasant, L., Crawley, E., & Hall, N. (2019). Successfully optimising trial recruitment via embedded qualitative studies: what's different about paediatric surgical trials in urgent care?. In TRIALS Vol. 20. Retrieved from https://www.webofscience.com/
When is enough enough? Patient, relative, and health care professionals experiences of research information provision in the intensive care unit
Paddock, K., Frith, L., Gamble, C., Welters, I., Woolfall, K., & Young, B. (2019). When is enough enough? Patient, relative, and health care professionals experiences of research information provision in the intensive care unit. In TRIALS Vol. 20. Retrieved from https://www.webofscience.com/
2018
Protective parents and permissive children: what qualitative interviews with parents and children can tell us about the feasibility of juvenile idiopathic arthritis trials
Sherratt, F. C., Roper, L., Stones, S. R., McErlane, F., Peak, M., Beresford, M. W., . . . Young, B. (2018). Protective parents and permissive children: what qualitative interviews with parents and children can tell us about the feasibility of juvenile idiopathic arthritis trials. PEDIATRIC RHEUMATOLOGY, 16. doi:10.1186/s12969-018-0293-2
MNGI-17. THE ROAM / EORTC 1308 INFORMATION STUDY RESULTS: HOW QUALITATIVE RESEARCH METHODS CAN OPTIMISE PATIENT RECRUITMENT FOR MENINGIOMA TRIALS
Jenkinson, M., Sherratt, F., Haylock, B., Weber, D., & Young, B. (2018). MNGI-17. THE ROAM / EORTC 1308 INFORMATION STUDY RESULTS: HOW QUALITATIVE RESEARCH METHODS CAN OPTIMISE PATIENT RECRUITMENT FOR MENINGIOMA TRIALS. Neuro-Oncology, 20(suppl_6), vi152. doi:10.1093/neuonc/noy148.633
MNGI-17. THE ROAM / EORTC 1308 INFORMATION STUDY RESULTS: HOW QUALITATIVE RESEARCH METHODS CAN OPTIMISE PATIENT RECRUITMENT FOR MENINGIOMA TRIALS
Jenkinson, M., Sherratt, F., Haylock, B., Weber, D., & Young, B. (2018). MNGI-17. THE ROAM / EORTC 1308 INFORMATION STUDY RESULTS: HOW QUALITATIVE RESEARCH METHODS CAN OPTIMISE PATIENT RECRUITMENT FOR MENINGIOMA TRIALS. Neuro-oncology, 20(Suppl 6), vi152.
USING QUALITATIVE RESEARCH METHODS TO OPTIMISE RECRUITMENT: THE ROAM (RADIATION VERSUS OBSERVATION FOLLOWING SURGICAL RESECTION OF ATYPICAL MENINGIOMA) INFORMATION STUDY
Jenkinson, M., Sherratt, F., Haylock, B., Javadpour, M., & Young, B. (2018). USING QUALITATIVE RESEARCH METHODS TO OPTIMISE RECRUITMENT: THE ROAM (RADIATION VERSUS OBSERVATION FOLLOWING SURGICAL RESECTION OF ATYPICAL MENINGIOMA) INFORMATION STUDY. In NEURO-ONCOLOGY Vol. 20 (pp. 345). Retrieved from https://www.webofscience.com/
Phase III randomized controlled trials are essential to properly evaluate the role of radiotherapy in WHO grade II meningioma
Jenkinson, M. D., Weber, D. C., Haylock, B. J., Sherratt, F. C., Young, B., Weller, M., . . . Gamble, C. (2018). Phase III randomized controlled trials are essential to properly evaluate the role of radiotherapy in WHO grade II meningioma. JOURNAL OF NEUROSURGERY, 129(4), 1104-1105. doi:10.3171/2018.6.JNS181418
USING QUALITATIVE RESEARCH METHODS TO OPTIMISE RECRUITMENT: THE ROAM (RADIATION VERSUS OBSERVATION FOLLOWING SURGICAL RESECTION OF ATYPICAL MENINGIOMA) INFORMATION STUDY
Jenkinson, M., Sherratt, F., Haylock, B., Javadpour, M., & Young, B. (2018). USING QUALITATIVE RESEARCH METHODS TO OPTIMISE RECRUITMENT: THE ROAM (RADIATION VERSUS OBSERVATION FOLLOWING SURGICAL RESECTION OF ATYPICAL MENINGIOMA) INFORMATION STUDY. Neuro-oncology, 20(Suppl 5), v345.
P05.14 Optimising trial recruitment in a meningioma trial using qualitative research methods: results from the ROAM / EORTC 1308 information study
Jenkinson, M. D., Sherratt, F. C., Haylock, B. J., Weber, D. C., & Young, B. (2018). P05.14 Optimising trial recruitment in a meningioma trial using qualitative research methods: results from the ROAM / EORTC 1308 information study. Neuro-Oncology, 20(suppl_3), iii305. doi:10.1093/neuonc/noy139.340
The association of metacognitive beliefs with emotional distress and trauma symptoms in adolescent and young adult survivors of cancer
Fisher, P. L., McNicol, K., Cherry, M. G., Young, B., Smith, E., Abbey, G., & Salmon, P. (2018). The association of metacognitive beliefs with emotional distress and trauma symptoms in adolescent and young adult survivors of cancer. JOURNAL OF PSYCHOSOCIAL ONCOLOGY, 36(5), 545-556. doi:10.1080/07347332.2018.1440276
OPTIMISING TRIAL RECRUITMENT IN A MENINGIOMA TRIAL USING QUALITATIVE RESEARCH METHODS: RESULTS FROM THE ROAM / EORTC 1308 INFORMATION STUDY
Jenkinson, M. D., Sherratt, F. C., Haylock, B. J., Weber, D. C., & Young, B. (2018). OPTIMISING TRIAL RECRUITMENT IN A MENINGIOMA TRIAL USING QUALITATIVE RESEARCH METHODS: RESULTS FROM THE ROAM / EORTC 1308 INFORMATION STUDY. In NEURO-ONCOLOGY Vol. 20 (pp. 305). Retrieved from https://www.webofscience.com/
P05.14 Optimising trial recruitment in a meningioma trial using qualitative research methods: results from the ROAM / EORTC 1308 information study
Jenkinson, M. D., Sherratt, F. C., Haylock, B. J., Weber, D. C., & Young, B. (2018). P05.14 Optimising trial recruitment in a meningioma trial using qualitative research methods: results from the ROAM / EORTC 1308 information study. Neuro-oncology, 20(Suppl 3), iii305.
Barriers and facilitators to parents seeking and accessing professional support for anxiety disorders in children: qualitative interview study
Reardon, T., Harvey, K., Young, B., O'Brien, D., & Creswell, C. (2018). Barriers and facilitators to parents seeking and accessing professional support for anxiety disorders in children: qualitative interview study. EUROPEAN CHILD & ADOLESCENT PSYCHIATRY, 27(8), 1023-1031. doi:10.1007/s00787-018-1107-2
Perspectives of patients with haematological cancer on how clinicians meet their information needs: "Managing" information versus "giving" it
Atherton, K., Young, B., Kalakonda, N., & Salmon, P. (2018). Perspectives of patients with haematological cancer on how clinicians meet their information needs: "Managing" information versus "giving" it. PSYCHO-ONCOLOGY, 27(07), 1719-1726. doi:10.1002/pon.4714
Children’s views on research without prior consent in emergency situations: a UK qualitative study
Roper, L., Sherratt, F., Young, B., Mcnamara, P., Dawson, A., Appleton, R., . . . Woolfall, K. (2018). Children’s views on research without prior consent in emergency situations: aUK qualitative study. BMJ Open, 8(6). doi:10.1136/bmjopen-2018-022894
Systematic Techniques to Enhance rEtention in Randomised controlled trials: the STEER study protocol
Gillies, K., Bower, P., Elliott, J., MacLennan, G., Newlands, R. S. N., Ogden, M., . . . Francis, J. J. (2018). Systematic Techniques to Enhance rEtention in Randomised controlled trials: the STEER study protocol. TRIALS, 19. doi:10.1186/s13063-018-2572-0
CONTRACT Study - CONservative TReatment of Appendicitis in Children (feasibility): study protocol for a randomised controlled Trial
Hutchings, N., Wood, W., Reading, I., Walker, E., Blazeby, J. M., van't Hoff, W., . . . Hall, N. J. (2018). CONTRACT Study - CONservative TReatment of Appendicitis in Children (feasibility): study protocol for a randomised controlled Trial. TRIALS, 19. doi:10.1186/s13063-018-2520-z
Training health professionals to recruit into challenging randomized controlled trials improved confidence: the development of the QuinteT randomized controlled trial recruitment training intervention
Mills, N., Gaunt, D., Blazeby, J. M., Elliott, D., Husbands, S., Holding, P., . . . Donovan, J. L. (2018). Training health professionals to recruit into challenging randomized controlled trials improved confidence: the development of the QuinteT randomized controlled trial recruitment training intervention. JOURNAL OF CLINICAL EPIDEMIOLOGY, 95, 34-44. doi:10.1016/j.jclinepi.2017.11.015
Survey indicated that core outcome set development is increasingly including patients, being conducted internationally and using Delphi surveys
Biggane, A. M., Brading, L., Ravaud, P., Young, B., & Williamson, P. R. (2018). Survey indicated that core outcome set development is increasingly including patients, being conducted internationally and using Delphi surveys. TRIALS, 19. doi:10.1186/s13063-018-2493-y
Pervasive, hard-wired and male: Qualitative study of how UK adolescents view alcohol-related aggression
Whitaker, L., Brown, S. L., Young, B., Fereday, R., Coyne, S. M., & Qualter, P. (2018). Pervasive, hard-wired and male: Qualitative study of how UK adolescents view alcohol-related aggression. PLOS ONE, 13(2). doi:10.1371/journal.pone.0191269
A core outcome set for clinical trials in oropharyngeal cancer
Waters, A. M. (2018). A core outcome set for clinical trials in oropharyngeal cancer.
THE ROAM / EORTC 1308 INFORMATION STUDY RESULTS: HOW QUALITATIVE RESEARCH METHODS CAN OPTIMISE PATIENT RECRUITMENT FOR MENINGIOMA TRIALS
Jenkinson, M., Sherratt, F., Haylock, B., Weber, D., & Young, B. (2018). THE ROAM / EORTC 1308 INFORMATION STUDY RESULTS: HOW QUALITATIVE RESEARCH METHODS CAN OPTIMISE PATIENT RECRUITMENT FOR MENINGIOMA TRIALS. In NEURO-ONCOLOGY Vol. 20 (pp. 152). Retrieved from https://www.webofscience.com/
2017
Development of a core outcome set to determine the overall treatment success of acute uncomplicated appendicitis in children: a study protocol
Sherratt, F. C., Eaton, S., Walker, E., Beasant, L., Blazeby, J. M., Young, B., . . . Hall, N. J. (2017). Development of a core outcome set to determine the overall treatment success of acute uncomplicated appendicitis in children: a study protocol. BMJ PAEDIATRICS OPEN, 1(1). doi:10.1136/bmjpo-2017-000151
GPs' experiences of children with anxiety disorders in primary care: a qualitative study
O'Brien, D., Harvey, K., Young, B., Reardon, T., & Creswell, C. (2017). GPs' experiences of children with anxiety disorders in primary care: a qualitative study. BRITISH JOURNAL OF GENERAL PRACTICE, 67(665), E888-E898. doi:10.3399/bjgp17X693473
Is clinical communication the one area of clinical oncology that needs no new ideas?
Salmon, P., & Young, B. (2017). Is clinical communication the one area of clinical oncology that needs no new ideas?. MEDICAL EDUCATION, 51(12), 1291-1293. doi:10.1111/medu.13373
Priorities for methodological research on patient and public involvement in clinical trials: A modified Delphi process
Kearney, A., Williamson, P., Young, B., Gamble, C., Bagley, H., Denegri, S., . . . woolfall, K. (2017). Priorities for methodological research on patient and public involvement in clinical trials: A modified Delphi process. Health Expectations, 20(6), 1401-1410. doi:10.1111/hex.12583
Understanding the information needs of people with haematological cancers. A meta-ethnography of quantitative and qualitative research.
Atherton, K., Young, B., & Salmon, P. (2017). Understanding the information needs of people with haematological cancers. A meta-ethnography of quantitative and qualitative research.. European Journal of Cancer Care, 26(6). doi:10.1111/ecc.12647
The inseparability of emotional and instrumental care in cancer: Towards a more powerful science of clinical communication.
Salmon, P., & Young, B. (2017). The inseparability of emotional and instrumental care in cancer: Towards a more powerful science of clinical communication. PATIENT EDUCATION AND COUNSELING, 100(11), 2138-2140. doi:10.1016/j.pec.2017.05.019
When trust is threatened: Qualitative study of parents' perspectives on problematic clinical relationships in child cancer care
Davies, S., Salmon, P., & Young, B. (2017). When trust is threatened: Qualitative study of parents' perspectives on problematic clinical relationships in child cancer care. Psycho-Oncology: journal of the psychological, social and behavioral dimensions of cancer, 26(9), 1301-1306. doi:10.1002/pon.4454
The COMET Handbook: version 1.0
Williamson, P., Altman, D. G., Bagley, H., Barnes, K. L., Blazeby, J. M., Brookes, S. T., . . . Young, B. (2017). The COMET Handbook: version 1.0. Trials, 18(Suppl 3), 50 pages. doi:10.1186/s13063-017-1978-4
Communication with young people in paediatric and adult endocrine consultations: an intervention development and feasibility study
Downing, J., Gleeson, H., Clayton, P. E., Davis, J. R. E., Dimitri, P., Wales, J., . . . Callery, P. (2017). Communication with young people in paediatric and adult endocrine consultations: an intervention development and feasibility study. BMC ENDOCRINE DISORDERS, 17. doi:10.1186/s12902-017-0182-6
Developing and evaluating multimedia information resources to improve engagement of children, adolescents, and their parents with trials (TRECA study): Study protocol for a series of linked randomised controlled trials.
Martin-Kerry, J., Bower, P., Young, B., Graffy, J., Sheridan, R., Watt, I., . . . Knapp, P. (2017). Developing and evaluating multimedia information resources to improve engagement of children, adolescents, and their parents with trials (TRECA study): Study protocol for a series of linked randomised controlled trials. TRIALS, 18. doi:10.1186/s13063-017-1962-z
Improving core outcome set development: qualitative interviews with developers provided pointers to inform guidance.
Gargon, E., Williamson, P. R., & Young, B. (2017). Improving core outcome set development: qualitative interviews with developers provided pointers to inform guidance. JOURNAL OF CLINICAL EPIDEMIOLOGY, 86, 140-152. doi:10.1016/j.jclinepi.2017.04.024
P12.10 The ROAM / EORTC 1308 trial: Radiation versus observation following surgical resection of atypical meningioma - study update
Jenkinson, M. D., Javadpour, M., Haylock, B. J., Young, B., Bulbeck, H., Farrell, M., . . . Weber, D. (2017). P12.10 The ROAM / EORTC 1308 trial: Radiation versus observation following surgical resection of atypical meningioma - study update. Neuro-oncology, 19(Suppl 3), iii97.
THE ROAM / EORTC 1308 TRIAL: RADIATION VERSUS OBSERVATION FOLLOWING SURGICAL RESECTION OF ATYPICAL MENINGIOMA - STUDY UPDATE
Jenkinson, M. D., Javadpour, M., Haylock, B. J., Young, B., Bulbeck, H., Farrell, M., . . . Weber, D. (2017). THE ROAM / EORTC 1308 TRIAL: RADIATION VERSUS OBSERVATION FOLLOWING SURGICAL RESECTION OF ATYPICAL MENINGIOMA - STUDY UPDATE. In NEURO-ONCOLOGY Vol. 19 (pp. 97). Retrieved from https://www.webofscience.com/
A new paradigm for clinical communication: critical review of literature in cancer care.
Salmon, P., & Young, B. (2017). A new paradigm for clinical communication: critical review of literature in cancer care. MEDICAL EDUCATION, 51(3), 258-268. doi:10.1111/medu.13204
An evaluation of the impact of quintet RCT recruitment training on the self-confidence and self-assessed recruitment practice of recruiters to surgical trials
Mills, N., Blazeby, J. M., Gaunt, D., Elliott, D., Husbands, S., Holding, P., . . . Donovan, J. L. (2017). An evaluation of the impact of quintet RCT recruitment training on the self-confidence and self-assessed recruitment practice of recruiters to surgical trials. In TRIALS Vol. 18. Retrieved from https://www.webofscience.com/
Do multimedia resources increase the quality of information provision and rate of recruitment in trials involving children and adolescents?: protocol for the TRECA study
Martin-Kerry, J., Bower, P., Young, B., Graffy, J., Watt, I., Sheridan, R., . . . Higgins, S. (2017). Do multimedia resources increase the quality of information provision and rate of recruitment in trials involving children and adolescents?: protocol for the TRECA study. In TRIALS Vol. 18. Retrieved from https://www.webofscience.com/
Does advertising patient and public involvement in a trial to potential participants improve recruitment and response rates? An embedded cluster randomised trial
Hughes-Morley, A., Hann, M., Fraser, C., Meade, O., Lovell, K., Young, B., . . . O'Leary, N. (2017). Does advertising patient and public involvement in a trial to potential participants improve recruitment and response rates? An embedded cluster randomised trial. In TRIALS Vol. 18. Retrieved from https://www.webofscience.com/
Methods for including patients in core outcome set development
Biggane, A., Brading, L., Young, B., Ravaud, P., & Williamson, P. R. (2017). Methods for including patients in core outcome set development. In TRIALS Vol. 18. Retrieved from https://www.webofscience.com/
2016
The impact of advertising patient and public involvement on trial recruitment: embedded cluster randomised recruitment trial
Hughes-Morley, A., Hann, M., Fraser, C., Meade, O., Lovell, K., Young, B., . . . Bower, P. (2016). The impact of advertising patient and public involvement on trial recruitment: embedded cluster randomised recruitment trial. TRIALS, 17. doi:10.1186/s13063-016-1718-1
Research with children and young people: not on them
Sammons, H. M., Wright, K., Young, B., & Farsides, B. (2016). Research with children and young people: not on them. ARCHIVES OF DISEASE IN CHILDHOOD, 101(12), 1086-1089. doi:10.1136/archdischild-2015-309292
Questioning assent: how are children's views included as families make decisions about clinical trials?
Madden, L., Shilling, V., Woolfall, K., Sowden, E., Smyth, R. L., Williamson, P. R., & Young, B. (2016). Questioning assent: how are children's views included as families make decisions about clinical trials?. CHILD CARE HEALTH AND DEVELOPMENT, 42(6), 900-908. doi:10.1111/cch.12347
Towards understanding problems in the parent-practitioner relationship when a child has cancer: meta-synthesis of the qualitative literature
Davies, S., Young, B., & Salmon, P. (2016). Towards understanding problems in the parent-practitioner relationship when a child has cancer: meta-synthesis of the qualitative literature. PSYCHO-ONCOLOGY, 25(11), 1252-1260. doi:10.1002/pon.4285
Towards understanding problems in the parent-practitioner relationship when a child has cancer: meta-synthesis of the qualitative literature
Young, B., & salmon, P. (n.d.). Towards understanding problems in the parent-practitioner relationship when a child has cancer: meta-synthesis of the qualitative literature. Psycho-Oncology.
What can we learn from trial decliners about improving recruitment? Qualitative study
Hughes-Morley, A., Young, B., Hempel, R. J., Russell, I. T., Waheed, W., & Bower, P. (2016). What can we learn from trial decliners about improving recruitment? Qualitative study. TRIALS, 17. doi:10.1186/s13063-016-1626-4
OP78 Improving trial recruitment through improved communication about patient and public involvement: an embedded cluster randomised recruitment trial
Hughes-Morley, A., Hann, M., Frasier, C., Lovell, K., Meade, O., Young, B., . . . Bower, P. (2016). OP78 Improving trial recruitment through improved communication about patient and public involvement: an embedded cluster randomised recruitment trial. Oral Presentations, A43.2-A44. doi:10.1136/jech-2016-208064.78
Including patients in core outcome set development: issues to consider based on three workshops with around 100 international delegates
Young, B., & Bagley, H. (2016). Including patients in core outcome set development: issues to consider based on three workshops with around 100 international delegates. Research Involvement and Engagement, 2(1). doi:10.1186/s40900-016-0039-6
The use of qualitative methods to inform Delphi surveys in core outcome set development
Keeley, T., Williamson, P., Callery, P., Jones, L. L., Mathers, J., Jones, J., . . . Calvert, M. (2016). The use of qualitative methods to inform Delphi surveys in core outcome set development. TRIALS, 17. doi:10.1186/s13063-016-1356-7
A patient and public involvement (PPI) toolkit for meaningful and flexible involvement in clinical trials - a work in progress.
Bagley, H. J., Short, H., Harman, N. L., Hickey, H. R., Gamble, C. L., Woolfall, K., . . . Williamson, P. R. (2016). A patient and public involvement (PPI) toolkit for meaningful and flexible involvement in clinical trials - a work in progress.. Research involvement and engagement, 2, 15. doi:10.1186/s40900-016-0029-8
Fifteen-minute consultation: an evidence-based approach to research without prior consent (deferred consent) in neonatal and paediatric critical care trials
Woolfall, K., Frith, L., Dawson, A., Gamble, C., & Lyttle, M. D. (2016). Fifteen-minute consultation: an evidence-based approach to research without prior consent (deferred consent) in neonatal and paediatric critical care trials. ARCHIVES OF DISEASE IN CHILDHOOD-EDUCATION AND PRACTICE EDITION, 101(1), 49-53. doi:10.1136/archdischild-2015-309245
The efficacy of interventions for test anxiety in university students: A protocol for a systematic review and meta-analysis
Huntley, C. D., Young, B., Jha, V., & Fisher, P. L. (2016). The efficacy of interventions for test anxiety in university students: A protocol for a systematic review and meta-analysis. INTERNATIONAL JOURNAL OF EDUCATIONAL RESEARCH, 77, 92-98. doi:10.1016/j.ijer.2016.03.001
2015
A mixed methods study of researchers' experiences of developing core outcome sets
Gargon, E., Young, B., & Williamson, P. (2015). A mixed methods study of researchers' experiences of developing core outcome sets. In TRIALS Vol. 16. doi:10.1186/1745-6215-16-S2-P60
Advertising patient and public involvement in trials as a way of improving participant recruitment: development of an intervention and its evaluation
Hughes-Morley, A., Young, B., Hann, M., & Waheed, W. (2015). Advertising patient and public involvement in trials as a way of improving participant recruitment: development of an intervention and its evaluation. In TRIALS Vol. 16. doi:10.1186/1745-6215-16-S2-P100
Developing a toolkit for patient and public involvement in a clinical trials unit
Bagley, H., Harman, N., Woolfall, K., Young, B., Short, H., Hickey, H., & Williamson, P. (2015). Developing a toolkit for patient and public involvement in a clinical trials unit. TRIALS, 16. doi:10.1186/1745-6215-16-S2-O92
Maximising the impact of qualitative research in feasibility studies for randomised controlled trials: guidance for researchers
O'Cathain, A., Hoddinott, P., Lewin, S., Thomas, K., Young, B., Adamson, J., . . . Donovan, J. (2015). Maximising the impact of qualitative research in feasibility studies for randomised controlled trials: guidance for researchers. Trials, 16(S2). doi:10.1186/1745-6215-16-s2-o88
Realising the potential of patient and public involvement to make a difference: what can trial teams do?
Young, B., Dudley, L., Williamson, P., & Gamble, C. (2015). Realising the potential of patient and public involvement to make a difference: what can trial teams do?. In TRIALS Vol. 16. doi:10.1186/1745-6215-16-S2-O93
Using qualitative research to understand what outcomes matter to patients: direct and indirect approaches to outcome elicitation
Mathers, J., Keeley, T., Jones, L., Calvert, M., Williamson, P., Jones, J., . . . Young, B. (2015). Using qualitative research to understand what outcomes matter to patients: direct and indirect approaches to outcome elicitation. In TRIALS Vol. 16. doi:10.1186/1745-6215-16-S2-O39
The ROAM/EORTC-1308 trial: Radiation versus Observation following surgical resection of Atypical Meningioma: study protocol for a randomised controlled trial
Jenkinson, M. D., Javadpour, M., Haylock, B. J., Young, B., Gillard, H., Vinten, J., . . . Weber, D. C. (2015). The ROAM/EORTC-1308 trial: Radiation versus Observation following surgical resection of Atypical Meningioma: study protocol for a randomised controlled trial. TRIALS, 16. doi:10.1186/s13063-015-1040-3
Development of a feasible intervention to support communication with young people
Callery, P., Downing, J., Gleeson, H., Clayton, P., Davis, J., Dimitri, P., . . . Young, B. (n.d.). Development of a feasible intervention to support communication with young people. Endocrine Abstracts. doi:10.1530/endoabs.39.ep82
Clinical Trial Decisions in Difficult Circumstances: Parental Consent Under Time Pressure
Jansen-van der Weide, M. C., Caldwell, P. H. Y., Young, B., de Vries, M. C., Willems, D. L., Van't Hoff, W., . . . Offringa, M. (2015). Clinical Trial Decisions in Difficult Circumstances: Parental Consent Under Time Pressure. PEDIATRICS, 136(4), E983-E992. doi:10.1542/peds.2014-3402
How parents and practitioners experience research without prior consent (deferred consent) for emergency research involving children with life threatening conditions: a mixed method study
Woolfall, K., Frith, L., Gamble, C., Gilbert, R., Mok, Q., & Young, B. (2015). How parents and practitioners experience research without prior consent (deferred consent) for emergency research involving children with life threatening conditions: a mixed method study. BMJ Open, 5(9). doi:10.1136/bmjopen-2015-008522
An evidence base to optimise methods for involving patient and public contributors in clinical trials: a mixed-methods study
Gamble, C., Dudley, L., Allam, A., Bell, P., Buck, D., Goodare, H., . . . Young, B. (2015). An evidence base to optimise methods for involving patient and public contributors in clinical trials: a mixed-methods study. Health Services and Delivery Research, 3(39). doi:10.3310/hsdr03390
What Difference Does Patient and Public Involvement Make and What Are Its Pathways to Impact? Qualitative Study of Patients and Researchers from a Cohort of Randomised Clinical Trials
Dudley, L., Gamble, C., Preston, J., Buck, D., The EPIC Patient Advisory Group., Hanley, B., . . . Young, B. (2015). What Difference Does Patient and Public Involvement Make and What Are Its Pathways to Impact? Qualitative Study of Patients and Researchers from a Cohort of Randomised Clinical Trials. PLOS ONE, 10(6). doi:10.1371/journal.pone.0128817
Alleviating Emotional Distress in Adolescent and Young Adult Cancer Survivors: An Open Trial of Metacognitive Therapy
Fisher, P. L., McNicol, K., Young, B., Smith, E., & Salmon, P. (2015). Alleviating Emotional Distress in Adolescent and Young Adult Cancer Survivors: An Open Trial of Metacognitive Therapy. JOURNAL OF ADOLESCENT AND YOUNG ADULT ONCOLOGY, 4(2), 64-69. doi:10.1089/jayao.2014.0046
A little more conversation please? Qualitative study of researchers’ and patients’ interview accounts of training for patient and public involvement in clinical trials
Dudley, L., Gamble, C., Allam, A., Bell, P., Buck, D., Goodare, H., . . . Young, B. (2015). A little more conversation please? Qualitative study of researchers’ and patients’ interview accounts of training for patient and public involvement in clinical trials. Trials, 16. doi:10.1186/s13063-015-0667-4
How do surgeons think they learn about communication? A qualitative study
Mendick, N., Young, B., Holcombe, C., & Salmon, P. (2015). How do surgeons think they learn about communication? A qualitative study. Medical Education, 49(4), 408-416. doi:10.1111/medu.12648
Maximising the impact of qualitative research in feasibility studies for randomised controlled trials: guidance for researchers
O'Cathain, A., Hoddinott, P., Lewin, S., Thomas, K., Young, B., Adamson, J., . . . Donovan, J. (2015). Maximising the impact of qualitative research in feasibility studies for randomised controlled trials: guidance for researchers. TRIALS, 16. doi:10.1186/1745-6215-16-S2-O88
P07 Evidence-based guidance to inform consent seeking in children’s critical care trials
Woolfall, K., Frith, L., & Young, B. (2015). P07 Evidence-based guidance to inform consent seeking in children’s critical care trials. Archives of Disease in Childhood, 100(Suppl 3), A3.2-A4. doi:10.1136/archdischild-2015-308599.7
Factors affecting recruitment into depression trials: Systematic review, meta-synthesis and conceptual framework
Hughes-Morley, A., Young, B., Waheed, W., Small, N., & Bower, P. (2015). Factors affecting recruitment into depression trials: Systematic review, meta-synthesis and conceptual framework. JOURNAL OF AFFECTIVE DISORDERS, 172, 274-290. doi:10.1016/j.jad.2014.10.005
A mixed methods study of researchers’ experiences of developing core outcome sets
Gargon, E., Young, B., & Williamson, P. (2015). A mixed methods study of researchers’ experiences of developing core outcome sets. Trials, 16(Suppl 2), P60.
Advertising patient and public involvement in trials as a way of improving participant recruitment: development of an intervention and its evaluation
Hughes-Morley, A., Young, B., Hann, M., & Waheed, W. (2015). Advertising patient and public involvement in trials as a way of improving participant recruitment: development of an intervention and its evaluation. Trials, 16(Suppl 2), P100.
Developing a toolkit for patient and public involvement in a clinical trials unit
Bagley, H., Harman, N., Woolfall, K., Young, B., Short, H., Hickey, H., & Williamson, P. (2015). Developing a toolkit for patient and public involvement in a clinical trials unit. Trials, 16(Suppl 2), O92.
Realising the potential of patient and public involvement to make a difference: what can trial teams do?
Young, B., Dudley, L., Williamson, P., & Gamble, C. (2015). Realising the potential of patient and public involvement to make a difference: what can trial teams do?. Trials, 16(Suppl 2), O93.
The CONSENSUS Study: Preliminary results of a mixed methods study to develop a core outcome set for late phase clinical trials in Oropharyngeal Cancer
Waters, A. M. I., Smith, C. T., Young, B., & Jones, T. M. (2015). The CONSENSUS Study: Preliminary results of a mixed methods study to develop a core outcome set for late phase clinical trials in Oropharyngeal Cancer. In TRIALS Vol. 16. doi:10.1186/1745-6215-16-S1-P33
Using qualitative research to understand what outcomes matter to patients: direct and indirect approaches to outcome elicitation
Mathers, J., Keeley, T., Jones, L., Calvert, M., Williamson, P., Jones, J., . . . Young, B. (2015). Using qualitative research to understand what outcomes matter to patients: direct and indirect approaches to outcome elicitation. Trials, 16(Suppl 2), O39.
2014
From plans to actions in patient and public involvement: qualitative study of documented plans and the accounts of researchers and patients sampled from a cohort of clinical trials
Buck, D., Gamble, C., Dudley, L., Preston, J., Hanley, B., Williamson, P., . . . The EPIC Patient Advisory Group. (2014). From plans to actions in patient and public involvement: qualitative study of documented plans and the accounts of researchers and patients sampled from a cohort of clinical trials. BMJ Open, 4(12). doi:10.1136/bmjopen-2014-006400
Interventions to improve recruitment and retention in clinical trials: a survey and workshop to assess current practice and future priorities
Bower, P., Brueton, V., Gamble, C., Treweek, S., Smith, C. T., Young, B., & Williamson, P. (2014). Interventions to improve recruitment and retention in clinical trials: a survey and workshop to assess current practice and future priorities. TRIALS, 15. doi:10.1186/1745-6215-15-399
PO-0925 Children And Young People’s Experiences Of Adverse Drug Reactions And Pharmacovigilance In The Uk
Arnott, J., Hesselgreave, H., Nunn, A. J., Peak, M., Pirmohamed, M., Smyth, R. L., . . . Young, B. (2014). PO-0925 Children And Young People’s Experiences Of Adverse Drug Reactions And Pharmacovigilance In The Uk. Archives of Disease in Childhood, 99(Suppl 2), A552.2-A552. doi:10.1136/archdischild-2014-307384.1546
Patient and public involvement in the early stages of clinical trial development: a systematic cohort investigation
Gamble, C., Dudley, L., Allam, A., Bell, P., Goodare, H., Hanley, B., . . . Young, B. (2014). Patient and public involvement in the early stages of clinical trial development: a systematic cohort investigation. BMJ Open, 4(7). doi:10.1136/bmjopen-2014-005234
Patient and Public Participation in Health Care: Can We Do It Better?
Frith, L., Young, B., & Woolfall, K. (2014). Patient and Public Participation in Health Care: Can We Do It Better?. AMERICAN JOURNAL OF BIOETHICS, 14(6), 17-19. doi:10.1080/15265161.2014.903642
Doing challenging research studies in a patient centred way: qualitative study to inform a randomised controlled trial in the paediatric emergency care setting
Woolfall, K., Young, B., Frith, L., Appleton, R., Iyer, A., Messahel, S., . . . Gamble, B. (2014). Doing challenging research studies in a patient centred way: qualitative study to inform a randomised controlled trial in the paediatric emergency care setting. BMJ Open, 4(e005045), 11 pages. doi:10.1136/bmjopen-2014-005045
The CONSENSUS study: protocol for a mixed methods study to establish which outcomes should be included in a core outcome set for oropharyngeal cancer
Waters, A. M. I., Smith, C. T., Young, B., & Jones, T. M. (2014). The CONSENSUS study: protocol for a mixed methods study to establish which outcomes should be included in a core outcome set for oropharyngeal cancer. TRIALS, 15. doi:10.1186/1745-6215-15-168
ADRIC: Adverse Drug Reactions In Children – a programme of research using mixed methods
Smyth, R. L., Peak, M., Turner, M. A., Nunn, A. J., Williamson, P. R., Young, B., . . . Pirmohamed, M. (2014). ADRIC: Adverse Drug Reactions In Children – a programme of research using mixed methods.
2013
How experience makes a difference: practitioners' views on the use of deferred consent in paediatric and neonatal emergency care trials
Woolfall, K., Frith, L., Gamble, C., & Young, B. (2013). How experience makes a difference: practitioners' views on the use of deferred consent in paediatric and neonatal emergency care trials. BMC MEDICAL ETHICS, 14. doi:10.1186/1472-6939-14-45
The 'information spectrum': a qualitative study of how breast cancer surgeons give information and of how their patients experience it
Mendick, N., Young, B., Holcombe, C., & Salmon, P. (2013). The 'information spectrum': a qualitative study of how breast cancer surgeons give information and of how their patients experience it. PSYCHO-ONCOLOGY, 22(10), 2364-2371. doi:10.1002/pon.3301
Is communication guidance mistaken? Qualitative study of parent-oncologist communication in childhood cancer
Young, B., Hill, J., Gravenhorst, K., Ward, J., Eden, T., & Salmon, P. (2013). Is communication guidance mistaken? Qualitative study of parent-oncologist communication in childhood cancer. BRITISH JOURNAL OF CANCER, 109(4), 836-843. doi:10.1038/bjc.2013.413
What can we learn from parents about enhancing participation in pharmacovigilance?
Arnott, J., Hesselgreaves, H., Nunn, A. J., Peak, M., Pirmohamed, M., Smyth, R. L., . . . Young, B. (2013). What can we learn from parents about enhancing participation in pharmacovigilance?. BRITISH JOURNAL OF CLINICAL PHARMACOLOGY, 75(4), 1109-1117. doi:10.1111/j.1365-2125.2012.04441.x
New European Union regulation of clinical trials is conflicting on deferred consent in emergency situations
Gamble, C., Woolfall, K., Williamson, P., Appleton, R., & Young, B. (2013). New European Union regulation of clinical trials is conflicting on deferred consent in emergency situations. BMJ-BRITISH MEDICAL JOURNAL, 346. doi:10.1136/bmj.f667
Alleviating Emotional Distress in a Young Adult Survivor of Adolescent Cancer
McNicol, K., Salmon, P., Young, B., & Fisher, P. (2013). Alleviating Emotional Distress in a Young Adult Survivor of Adolescent Cancer. Clinical Case Studies, 12(1), 22-38. doi:10.1177/1534650112461298
Alleviating Emotional Distress in a Young Adult Survivor of Adolescent Cancer: A Case Study Illustrating a New Application of Metacognitive Therapy
McNicol, K., Salmon, P., Young, B., & Fisher, P. (2013). Alleviating Emotional Distress in a Young Adult Survivor of Adolescent Cancer: A Case Study Illustrating a New Application of Metacognitive Therapy. CLINICAL CASE STUDIES, 12(1), 22-38. doi:10.1177/1534650112461298
Comparing doctors' and nurses' accounts of how they provide emotional care for parents of children with acute lymphoblastic leukaemia
Forsey, M., Salmon, P., Eden, T., & Young, B. (2013). Comparing doctors' and nurses' accounts of how they provide emotional care for parents of children with acute lymphoblastic leukaemia. PSYCHO-ONCOLOGY, 22(2), 260-267. doi:10.1002/pon.2084
The validity of education and guidance for clinical communication in cancer care: Evidence-based practice will depend on practice-based evidence
Salmon, P., & Young, B. (2013). The validity of education and guidance for clinical communication in cancer care: Evidence-based practice will depend on practice-based evidence. PATIENT EDUCATION AND COUNSELING, 90(2), 193-199. doi:10.1016/j.pec.2012.04.010
Factors affecting recruitment into depression trials: systematic review and meta-synthesis of qualitative evidence
Hughes-Morley, A., Young, B., & Bower, P. (2013). Factors affecting recruitment into depression trials: systematic review and meta-synthesis of qualitative evidence. Trials, 14(Suppl 1), P82. doi:10.1186/1745-6215-14-s1-p82
Parents' agendas in paediatric clinical trial recruitment are different from researchers' and often remain unvoiced: A qualitative study
Woolfall, K., Shilling, V., Hickey, H., Smyth, R. L., Sowden, E., Williamson, P., & Young, B. (2013). Parents' agendas in paediatric clinical trial recruitment are different from researchers' and often remain unvoiced: A qualitative study. PLoS ONE.
Practitioner views and experiences of deferred consent in paediatric and neonatal emergency care trials: the connect study
Woolfall, K., Frith, L., Gamble, C., & Young, B. (2013). Practitioner views and experiences of deferred consent in paediatric and neonatal emergency care trials: the connect study. Trials, 14(Suppl 1), P104. doi:10.1186/1745-6215-14-s1-p104
The consensus studysquamous cell carcinoma of the oropharynx: late phase clinical trials; core outcomes
Waters, A., Tudur-Smith, C., Young, B., & Jones, T. M. (2013). The consensus studysquamous cell carcinoma of the oropharynx: late phase clinical trials; core outcomes. Trials, 14(Suppl 1), P78. doi:10.1186/1745-6215-14-s1-p78
What are parents' priorities when being invited to enter their child into a clinical trial and how far do they voice their priorities?
Young, B., Woolfall, K., & Williamson, P. (2013). What are parents' priorities when being invited to enter their child into a clinical trial and how far do they voice their priorities?. In Clinical Trials Methodology Conference (pp. x). Edinburgh: Trials.
What are parents’ priorities when being invited to enter their child into a clinical trial and how far do they voice their priorities?
Young, B., Woolfall, K., & Williamson, P. (2013). What are parents’ priorities when being invited to enter their child into a clinical trial and how far do they voice their priorities?. Trials, 14(Suppl 1), O72. doi:10.1186/1745-6215-14-s1-o72
2012
Enhancing Communication about Paediatric Medicines: Lessons from a Qualitative Study of Parents' Experiences of Their Child's Suspected Adverse Drug Reaction
Arnott, J., Hesselgreaves, H., Nunn, A. J., Peak, M., Pirmohamed, M., Smyth, R. L., . . . Young, B. (2012). Enhancing Communication about Paediatric Medicines: Lessons from a Qualitative Study of Parents' Experiences of Their Child's Suspected Adverse Drug Reaction. PLOS ONE, 7(10). doi:10.1371/journal.pone.0046022
StaR Child Health: Developing Evidence-Based Guidance for the Design, Conduct, and Reporting of Pediatric Trials
Hartling, L., Wittmeier, K. D. M., Caldwell, P., van der Lee, H., Klassen, T. P., Craig, J. C., & Offringa, M. (2012). StaR Child Health: Developing Evidence-Based Guidance for the Design, Conduct, and Reporting of Pediatric Trials. PEDIATRICS, 129, S112-S117. doi:10.1542/peds.2012-0055C
Standard 1: Consent and Recruitment
Caldwell, P. H. Y., Dans, L., de Vries, M. C., Newman, J., Sammons, H., Spriggs, M., . . . Offringa, M. (2012). Standard 1: Consent and Recruitment. PEDIATRICS, 129, S118-S123. doi:10.1542/peds.2012-0055D
Faith and Protection: The Construction of Hope by Parents of Children with Leukemia and Their Oncologists
Salmon, P., Hill, J., Ward, J., Gravenhorst, K., Eden, T., & Young, B. (2012). Faith and Protection: The Construction of Hope by Parents of Children with Leukemia and Their Oncologists. ONCOLOGIST, 17(3), 398-404. doi:10.1634/theoncologist.2011-0308
LUCAS: a theoretically informed instrument to assess clinical communication in objective structured clinical examinations
Huntley, C. D., Salmon, P., Fisher, P. L., Fletcher, I., & Young, B. (2012). LUCAS: a theoretically informed instrument to assess clinical communication in objective structured clinical examinations. MEDICAL EDUCATION, 46(3), 267-276. doi:10.1111/j.1365-2923.2011.04162.x
COMMUNICATING IN A WAY THAT PARENTS FIND SUPPORTIVE: IS THE GUIDANCE MISTAKEN?
Young, B., Eden, T., Hill, J., & Salmon, P. (2012). COMMUNICATING IN A WAY THAT PARENTS FIND SUPPORTIVE: IS THE GUIDANCE MISTAKEN?. In PEDIATRIC BLOOD & CANCER Vol. 59 (pp. 984). Retrieved from https://www.webofscience.com/
SHOULD THE CHILD BE PRESENT 'IN THE ROOM' DURING MEDICAL CONSULTATIONS?
Young, B. (2012). SHOULD THE CHILD BE PRESENT 'IN THE ROOM' DURING MEDICAL CONSULTATIONS?. In PEDIATRIC BLOOD & CANCER Vol. 59 (pp. 969). Retrieved from https://www.webofscience.com/
The COMET Initiative
Waters, A., Tudur-Smith, C., Young, B., & Jones, T. M. (2012). The COMET Initiative. In 9th Annual Meeting of Health Technology Assessment International (HTAi) (pp. 1). Bilbao: HTAi.
The psychological processes involved in patient empowerment
Aujoulat, I., Young, B., & Salmon, P. (2012). The psychological processes involved in patient empowerment. Orphanet journal of rare diseases, 7(Suppl 2), A31. doi:10.1186/1750-1172-7-s2-a31
What Parents of Children Who Have Received Emergency Care Think about Deferring Consent in Randomised Trials of Emergency Treatments: Postal Survey
Gamble, C., Nadel, S., Snape, D., McKay, A., Hickey, H., Williamson, P., . . . Young, B. (n.d.). What Parents of Children Who Have Received Emergency Care Think about Deferring Consent in Randomised Trials of Emergency Treatments: Postal Survey. PLoS ONE, 7(5), e35982. doi:10.1371/journal.pone.0035982
2011
Examining the validity of the unitary theory of clinical relationships: Comparison of observed and experienced parent-doctor interaction
Young, B., Ward, J., Forsey, M., Gravenhorst, K., & Salmon, P. (2011). Examining the validity of the unitary theory of clinical relationships: Comparison of observed and experienced parent-doctor interaction. PATIENT EDUCATION AND COUNSELING, 85(1), 60-67. doi:10.1016/j.pec.2010.08.027
Telling "Everything" but not "Too Much": The Surgeon's Dilemma in Consultations about Breast Cancer
Mendick, N., Young, B., Holcombe, C., & Salmon, P. (2011). Telling "Everything" but not "Too Much": The Surgeon's Dilemma in Consultations about Breast Cancer. WORLD JOURNAL OF SURGERY, 35(10), 2187-2195. doi:10.1007/s00268-011-1195-3
Is clinical communication pedagogy really as good as it's going to get?
Salmon, P., & Young, B. (2011). Is clinical communication pedagogy really as good as it's going to get?. MEDICAL EDUCATION, 45(9), 961-962. doi:10.1111/j.1365-2923.2011.04047.x
Communication about Children's Clinical Trials as Observed and Experienced: Qualitative Study of Parents and Practitioners
Shilling, V., Williamson, P. R., Hickey, H., Sowden, E., Beresford, M. W., Smyth, R. L., & Young, B. (2011). Communication about Children's Clinical Trials as Observed and Experienced: Qualitative Study of Parents and Practitioners. PLOS ONE, 6(7). doi:10.1371/journal.pone.0021604
Incorporating Children's and Their Parents' Perspectives into Condition-Specific Quality-of-Life Instruments for Children with Cerebral Palsy: A Qualitative Study
Parkinson, K. N., Rice, H., & Young, B. (2011). Incorporating Children's and Their Parents' Perspectives into Condition-Specific Quality-of-Life Instruments for Children with Cerebral Palsy: A Qualitative Study. VALUE IN HEALTH, 14(5), 705-711. doi:10.1016/j.jval.2010.12.003
Processes in recruitment to randomised controlled trials of medicines for children (RECRUIT): a qualitative study
Shilling, V., Williamson, P. R., Hickey, H., Sowden, E., Smyth, R. L., & Young, B. (2011). Processes in recruitment to randomised controlled trials of medicines for children (RECRUIT): a qualitative study. HEALTH TECHNOLOGY ASSESSMENT, 15(15), 1-+. doi:10.3310/hta15150
Parents' Experiences of Their Children's Presence in Discussions With Physicians About Leukemia
Young, B., Ward, J., Salmon, P., Gravenhorst, K., Hill, J., & Eden, T. (2011). Parents' Experiences of Their Children's Presence in Discussions With Physicians About Leukemia. PEDIATRICS, 127(5), E1230-E1238. doi:10.1542/peds.2010-2402
Creativity in clinical communication: from communication skills to skilled communication
Salmon, P., & Young, B. (2011). Creativity in clinical communication: from communication skills to skilled communication. MEDICAL EDUCATION, 45(3), 217-226. doi:10.1111/j.1365-2923.2010.03801.x
Integrative qualitative communication analysis of consultation and patient and practitioner perspectives: Towards a theory of authentic caring in clinical relationships
Salmon, P., Mendick, N., & Young, B. (2011). Integrative qualitative communication analysis of consultation and patient and practitioner perspectives: Towards a theory of authentic caring in clinical relationships. PATIENT EDUCATION AND COUNSELING, 82(3), 448-454. doi:10.1016/j.pec.2010.10.017
Development of the Verona coding definitions of emotional sequences to code health providers’ responses (VR-CoDES-P) to patient cues and concerns
Del Piccolo, L., de Haes, H., Heaven, C., Jansen, J., Verheul, W., Bensing, J., . . . Finset, A. (2011). Development of the Verona coding definitions of emotional sequences to code health providers’ responses (VR-CoDES-P) to patient cues and concerns. Patient Education and Counseling, 82(2), 149-155. doi:10.1016/j.pec.2010.02.024
From communications skills to skilled communication: clinical communication as creative art
Salmon, P., & Young, B. (2011). From communications skills to skilled communication: clinical communication as creative art. Medical Education, 45, 217-226.
SHOULD PREADOLESCENT CHILDREN BE PRESENT DURING CONSULTATIONS: QUALITATIVE INTERVIEW STUDY WITH PARENTS IN THE MONTHS AFTER THEIR CHILD'S DIAGNOSIS WITH CANCER
Eden, T., Ward, J., Salmon, P., Gravenhorst, K., Hill, J., & Young, B. (2011). SHOULD PREADOLESCENT CHILDREN BE PRESENT DURING CONSULTATIONS: QUALITATIVE INTERVIEW STUDY WITH PARENTS IN THE MONTHS AFTER THEIR CHILD'S DIAGNOSIS WITH CANCER. PEDIATRIC BLOOD & CANCER, 56(7), 1163. Retrieved from https://www.webofscience.com/
What parents think about being approached about children’s trials, how this differs from what practitioners expect, and what this tells us about enhancing recruitment
Young, B., Shilling, V., Hickey, H., Sowden, E., Smyth, R. L., & Williamson, P. R. (2011). What parents think about being approached about children’s trials, how this differs from what practitioners expect, and what this tells us about enhancing recruitment. Trials, 12(Suppl 1), A116. doi:10.1186/1745-6215-12-s1-a116
2010
Balancing high accrual and ethical recruitment in paediatric oncology: a qualitative study of the 'look and feel' of clinical trial discussions
Byrne-Davis, L. M. T., Salmon, P., Gravenhorst, K., Eden, T. O. B., & Young, B. (2010). Balancing high accrual and ethical recruitment in paediatric oncology: a qualitative study of the 'look and feel' of clinical trial discussions. BMC MEDICAL RESEARCH METHODOLOGY, 10. doi:10.1186/1471-2288-10-101
The ethics of responsibility and ownership in decision-making about treatment for breast cancer: Triangulation of consultation with patient and surgeon perspectives
Mendick, N., Young, B., Holcombe, C., & Salmon, P. (2010). The ethics of responsibility and ownership in decision-making about treatment for breast cancer: Triangulation of consultation with patient and surgeon perspectives. SOCIAL SCIENCE & MEDICINE, 70(12), 1904-1911. doi:10.1016/j.socscimed.2009.12.039
Communication about clinical trials as observed and experienced: the views of parents and practitioners
Shilling, V., Hickey, H., Smyth, R., Sowden, E., Williamson, P., & Young, B. (2010). Communication about clinical trials as observed and experienced: the views of parents and practitioners. Archives of Disease in Childhood, 95(Suppl 1), A1.1-A1. doi:10.1136/adc.2010.186338.1
Parent/carer views about deferred consent in trials of emergency treatments in children with life-threatening illness
Nadel, S., Young, B., Gamble, C., Hickey, H., Williamson, P., Snape, D., . . . Glennie, L. (2010). Parent/carer views about deferred consent in trials of emergency treatments in children with life-threatening illness. Archives of Disease in Childhood, 95(Suppl 1), A39.2-A39. doi:10.1136/adc.2010.186338.87
Parents' accounts of the presence of their preadolescent child during discussions with doctors in the months after the child's diagnosis with serious illness: qualitative interview study
Young, B., Ward, J., Salmon, P., Gravenhorst, K., Hill, J., & Eden, T. (2010). Parents' accounts of the presence of their preadolescent child during discussions with doctors in the months after the child's diagnosis with serious illness: qualitative interview study. Archives of Disease in Childhood, 95(Suppl 1), A100.1-A100. doi:10.1136/adc.2010.186338.216
Communication in paediatric oncology lacks overt emotion yet still comforts parent
Young, B., & Salmon, P. (2010). Communication in paediatric oncology lacks overt emotion yet still comforts parent. In Eurpoean Association for Communication in Healthcare (pp. 1). Verona: Elsevier.
Distinguishing responsibility from ownership in decision-making about treatment for breast cancer: triangulation of consultation with patient and surgeon perspectives
Mendick, N., Young, B., Holcombe, C., & Salmon, P. (2010). Distinguishing responsibility from ownership in decision-making about treatment for breast cancer: triangulation of consultation with patient and surgeon perspectives. Social Science and Medicine, 70, 1904-1911.
SHOULD PREADOLESCENT CHILDREN BE PRESENT DURING CONSULTATIONS: QUALITATIVE INTERVIEW STUDY WITH PARENTS IN THE MONTHS AFTER THEIR CHILD'S DIAGNOSIS WITH CANCER
Young, B., Ward, J., Salmon, P., Gravenhorst, K., Hill, J., & Eden, T. (2010). SHOULD PREADOLESCENT CHILDREN BE PRESENT DURING CONSULTATIONS: QUALITATIVE INTERVIEW STUDY WITH PARENTS IN THE MONTHS AFTER THEIR CHILD'S DIAGNOSIS WITH CANCER. In PEDIATRIC BLOOD & CANCER Vol. 55 (pp. 959). Retrieved from https://www.webofscience.com/
2009
Seeking consent to tissue banking: a survey of health professionals in childhood cancer
Jackson, C., Dixon-Woods, M., Tobin, M., Young, B., Heney, D., & Pritchard-Jones, K. (2009). Seeking consent to tissue banking: a survey of health professionals in childhood cancer. EUROPEAN JOURNAL OF CANCER CARE, 18(4), 391-400. doi:10.1111/j.1365-2354.2008.01033.x
How do parents experience being asked to enter a child in a randomised controlled trial?
Shilling, V., & Young, B. (2009). How do parents experience being asked to enter a child in a randomised controlled trial?. BMC MEDICAL ETHICS, 10. doi:10.1186/1472-6939-10-1
Dependence and caring in clinical communication: the relevance of attachment and the theories
Salmon, P., & Young, B. (2009). Dependence and caring in clinical communication: the relevance of attachment and the theories. Patient Education and Counseling, 74, 331-338.
Judging the appropriateness of practitioners' responses to cues and concerns
Fletcher, I., Salmon, P., & Young, B. (2009). Judging the appropriateness of practitioners' responses to cues and concerns. In Verona Network on Sequence Analysis VII invitational workshop (pp. 00). Verona: None.
2008
Practitioners' accounts of the parent-practitioner relationship in the care of children with leukaemia
Forsey, M., Young, B., & Salmon, P. (2008). Practitioners' accounts of the parent-practitioner relationship in the care of children with leukaemia. PSYCHOLOGY & HEALTH, 23, 122. Retrieved from https://www.webofscience.com/
Book reviews
Young, B., Exley, C., & Dixon-Woods, M. (n.d.). Book reviews. Health & Social Care in the Community, 9(2), 118-119. doi:10.1111/j.1365-2524.2001.277-2.x
Book reviews
Young, B., Exley, C., & Dixon-Woods, M. (n.d.). Book reviews. Health & Social Care in the Community, 9(2), 118. doi:10.1111/j.1365-2524.2001.00277.x
Synthesising Qualitative and Quantitative Evidence within a Systematic Review
Dixon-Woods, M., Agarwal, S., Jones, D. R., Young, B., Sutton, A. J., & Noyes, J. (2008). Synthesising Qualitative and Quantitative Evidence within a Systematic Review. In R. Watson, H. McKenna, S. Cowman, & J. Keady (Eds.), Nursing Research: Designs and Methods, . (pp. x). London: Churchill Livingston.
Therapeutic alliance between children, parents and practitioners: some challenges and contributions.
Young, B., Wissow, L., Cox, E., Callery, P., & Salmon, P. (2008). Therapeutic alliance between children, parents and practitioners: some challenges and contributions.. In European Association of Communication in Healthcare (pp. x). Norway: Elsevier.
Tissue Samples as ‘Gifts’ for Research: A Qualitative Study of Families and Professionals
Dixon-Woods, M., Cavers, D., Jackson, C. J., Young, B., Forster, J., Heney, D., & Pritchard-Jones, K. (2008). Tissue Samples as ‘Gifts’ for Research: A Qualitative Study of Families and Professionals. Medical Law International, 9(2), 131-150. doi:10.1177/096853320800900203
Tissue samples as gifts to research
Dixon-Woods, M., Cavers, D., Jackson, C., Young, B., Forster, J., Heney, D., & Pritchard-Jones, K. (2008). Tissue samples as gifts to research. Medical Law International, 9, 131-150.
2007
Introduction
Dixon-Woods, M., Young, B., & Heney, D. (2007). Introduction. Chronic Illness, 3(4), 251-252. doi:10.1177/1742395307085402
A qualitative study of the health-related quality of life of disabled children
Young, B., Rice, H., Dixon-Woods, M., Colver, A. F., & Parkinson, K. N. (2007). A qualitative study of the health-related quality of life of disabled children. DEVELOPMENTAL MEDICINE AND CHILD NEUROLOGY, 49(9), 660-665. doi:10.1111/j.1469-8749.2007.00660.x
In this issue
Lawson, K. (2007). In this issue. INTERNATIONAL POLITICAL SCIENCE REVIEW, 28(3), 251-252. doi:10.1177/0192512107077514
A systematic review of communication skills teaching in undergraduate medical education.
Young, B., McDermott, M., Carroll, J., & Peters, S. (2007). A systematic review of communication skills teaching in undergraduate medical education.. In American Academy on Communication in Healthcare International Conference (pp. x). Charleston, SC, USA: Elsevier.
Appraising qualitative research for inclusion in systematic reviews: a quantitative and qualitative comparison of three methods.
Dixon-Woods, M., Sutton, A., Shaw, R., Miller, T., Smith, J., Young, B., . . . Jones, D. (2007). Appraising qualitative research for inclusion in systematic reviews: a quantitative and qualitative comparison of three methods.. Journal of health services research & policy, 12(1), 42-47. doi:10.1258/135581907779497486
Introduction: special issue on childhood cancer
Dixon-Woods, M., Young, B., & Heney, D. (2007). Introduction: special issue on childhood cancer. Chronic Illness, 3, 351-352.
What's important to disabled children?
Young, B., & Dixon-Woods, M. (2007). What's important to disabled children?. In Researching children's health: implications of the WHO International Classification of Functioning, Disability and Health Conference (pp. x). Oxford: x.
2006
Researching chronic childhood illness: the example of childhood cancer
Dixon-Woods, M., Young, B., & Ross, E. (2006). Researching chronic childhood illness: the example of childhood cancer. Chronic Illness, 2(3), 165-177. doi:10.1177/17423953060020030901
Researching chronic childhood illness: the example of childhood cancer.
Dixon-Woods, M., Young, B., & Ross, E. (2006). Researching chronic childhood illness: the example of childhood cancer.. Chronic illness, 2(3), 165-177. doi:10.1177/17423953060020030901
Decision-making in community-based paediatric physiotherapy: a qualitative study of children, parents and practitioners
Young, B., Moffett, J. K., Jackson, D., & McNulty, A. (2006). Decision-making in community-based paediatric physiotherapy: a qualitative study of children, parents and practitioners. HEALTH & SOCIAL CARE IN THE COMMUNITY, 14(2), 116-124. doi:10.1111/j.1365-2524.2006.00599.x
How can systematic reviews incorporate qualitative research? A critical perspective
Dixon-Woods, M., Bonas, S., Booth, A., Jones, D. R., Miller, T., Sutton, A. J., . . . Young, B. (2006). How can systematic reviews incorporate qualitative research? A critical perspective. Qualitative Research, 6(1), 27-44. doi:10.1177/1468794106058867
'Quality of life and childhood disability'
Young, B., Parkinson, K., Colver, A., & Dixon-Woods, M. (2006). 'Quality of life and childhood disability'. Swindon: ESRC.
A systematic review of communication skills teaching in undergraduate medical education.
Young, B., McDermott, M., Carroll, J., Lobban, F., Peters, S., Young, K., . . . Williamson, P. (2006). A systematic review of communication skills teaching in undergraduate medical education.. In European Association of Communication in Healthcare International Conference, (pp. *). Basle: Elsevier.
2005
. A systematic review of different models of learning and teaching communication skills
Mc, D. M., Young, B., Carroll, J., Lobban, F., Nancarrow, R., Peters, S., & Young, K. M. (2005). . A systematic review of different models of learning and teaching communication skills. In Association for Medical Education in Europe (AMEE) (pp. 1). Amsterdam: Association for Medical Education in Europe (AMEE).
Core assumptions and research opportunities in clinical communication
Salmon, P., & Young, B. (2005). Core assumptions and research opportunities in clinical communication. PATIENT EDUCATION AND COUNSELING, 58(3), 225-234. doi:10.1016/j.pec.2005.05.018
Parent's accounts of their role in moderating their child's quality of life; a qualitative study of parents of disabled children
Rice, H., Young, B., Parkinson, K., Colver, A., & Dixon-Woods, M. (2005). Parent's accounts of their role in moderating their child's quality of life; a qualitative study of parents of disabled children. In British Sociological Association, Medical Sociology Group (pp. 1). York: BSA.
Parents¿ accounts of obtaining a diagnosis of childhood cancer
Dixon-Woods, M., Findlay, M., Young, B., Heney, D., & Cox, H. (2005). Parents¿ accounts of obtaining a diagnosis of childhood cancer. In R. Richardson (Ed.), Vintage Papers from the Lancet (pp. 1-2). Edinburgh: Elsevier.
Quality of life and childhood disability: a qualitative study into quality of life for children with cerebral palsy aged 8-12
Rice, H., Parkinson, K., Colver, A., Dixon-Woods, M., & Young, B. (2005). Quality of life and childhood disability: a qualitative study into quality of life for children with cerebral palsy aged 8-12. Patient Reported Outcomes Newsletter, 19-20.
Quality of life and childhood disability: accounts from children
Young, B., Rice, H., Parkinson, K., Dixon-Woods, M., & Colver, A. (2005). Quality of life and childhood disability: accounts from children. In European Academy of Childhood Disability Annual Meeting (pp. 1). Monaco: European Academy of Childhood Disability.
Rethinking Experiences of Childhood Cancer
Dixon-Woods, M., Young, B., & Heney, D. (2005). Rethinking Experiences of Childhood Cancer. Milton Keynes: Open University Press.
Synthesising qualitative and quantitative evidence in reviews: a review of methods
Dixon-Woods, M., Agarwal, S., Jones, D., Young, B., & Sutton, A. (2005). Synthesising qualitative and quantitative evidence in reviews: a review of methods. Journal of Health Services Research and Policy, 10, 45-53.
Synthesising qualitative and quantitative evidence: A review of possible methods
Dixon-Woods, M., Agarwal, S., Jones, D., Young, B., & Sutton, A. (2005). Synthesising qualitative and quantitative evidence: A review of possible methods. Journal of Health Services Research & Policy, 10(1), 45-53. doi:10.1177/135581960501000110
Synthesising qualitative and quantitative evidence: a review of possible methods.
Dixon-Woods, M., Agarwal, S., Jones, D., Young, B., & Sutton, A. (2005). Synthesising qualitative and quantitative evidence: a review of possible methods.. In Unknown Book (Vol. 10, pp. 45-53). doi:10.1177/135581960501000110
2004
Finding qualitative research: an evaluation of search strategies.
Shaw, R. L., Booth, A., Sutton, A. J., Miller, T., Smith, J. A., Young, B., . . . Dixon-Woods, M. (2004). Finding qualitative research: an evaluation of search strategies.. BMC medical research methodology, 4, 5. doi:10.1186/1471-2288-4-5
A systematic review of molecular and biological tumor markers in neuroblastoma
Riley, R. D., Heney, D., Jones, D. R., Sutton, A. J., Lambert, P. C., Abrams, K. R., . . . Burchill, S. A. (2004). A systematic review of molecular and biological tumor markers in neuroblastoma. CLINICAL CANCER RESEARCH, 10(1), 4-12. doi:10.1158/1078-0432.CCR-1051-2
Approaches to Qualitative and Quantitative Evidence
Dixon-Woods, M., Agarwal, S., Young, B., Jones, D. R., & Sutton, A. J. (2004). Approaches to Qualitative and Quantitative Evidence. London: Health Development Agency.
Evaluation of a New Mental Health Service for Looked after Children
Callaghan, J., Young, B., Pace, F., & Vostanis, P. (2004). Evaluation of a New Mental Health Service for Looked after Children. Clinical Child Psychology and Psychiatry, 9(1), 130-148. doi:10.1177/1359104504039177
Finding qualitative research: a literature searching study
Shaw, R. L., Booth, A., Sutton, A. J., Miller, T., Smith, J. A., Young, B., . . . Dixon-Woods, M. (2004). Finding qualitative research: a literature searching study. BMC Medical Research Methodology, 4(5).
Finding qualitative research: an evaluation of search strategies
Shaw, R. L., Booth, A., Sutton, A. J., Miller, T., Smith, J. A., Young, B., . . . Dixon-Woods, M. (n.d.). Finding qualitative research: an evaluation of search strategies. BMC Medical Research Methodology, 4(1). doi:10.1186/1471-2288-4-5
2003
Developing New Mental Health Services for Looked after Children: A Focus Group Study
Callaghan, J., Young, B., Richards, M., & Vostanis, P. (2003). Developing New Mental Health Services for Looked after Children: A Focus Group Study. Adoption & Fostering, 27(4), 51-63. doi:10.1177/030857590302700408
Representing childhood cancer: accounts from newspapers and parents
Dixon-Woods, M., Seale, C., Young, B., Findlay, M., & Heney, D. (2003). Representing childhood cancer: accounts from newspapers and parents. SOCIOLOGY OF HEALTH & ILLNESS, 25(2), 143-164. doi:10.1111/1467-9566.00329
Managing communication with young people who have a potentially life threatening chronic illness: qualitative study of patients and parents
Young, B., Dixon-Woods, M., Windridge, K. C., & Heney, D. (2003). Managing communication with young people who have a potentially life threatening chronic illness: qualitative study of patients and parents. BRITISH MEDICAL JOURNAL, 326(7384), 305-308B. doi:10.1136/bmj.326.7384.305
A systematic review and evaluation of the use of tumour markers in paediatric oncology: Ewing's sarcoma and neuroblastoma.
Riley, R. D., Burchill, S. A., Abrams, K. R., Heney, D., Lambert, P. C., Jones, D. R., . . . Lewis, I. J. (2003). A systematic review and evaluation of the use of tumour markers in paediatric oncology: Ewing's sarcoma and neuroblastoma.. Health technology assessment (Winchester, England), 7(5), 1-162. doi:10.3310/hta7050
A systematic review of molecular and biological markers in tumours of the Ewing's sarcoma family
Riley, R. D., Burchill, S. A., Abrams, K. R., Heney, D., Sutton, A. J., Jones, D. R., . . . Lewis, I. J. (2003). A systematic review of molecular and biological markers in tumours of the Ewing's sarcoma family. EUROPEAN JOURNAL OF CANCER, 39(1), 19-30. doi:10.1016/S0959-8049(02)00500-2
Mental health support for youth offending teams: a qualitative study
Callaghan, J., Young, B., Pace, F., & Vostanis, P. (2003). Mental health support for youth offending teams: a qualitative study. HEALTH & SOCIAL CARE IN THE COMMUNITY, 11(1), 55-63. doi:10.1046/j.1365-2524.2003.00400.x
Parents' accounts of their children's respiratory symptoms showed a range of interpretations
Young, B., Fitch, G., Dixon-Woods, M., Lambert, P., & Brooke, A. (2003). Parents' accounts of their children's respiratory symptoms showed a range of interpretations. Evidence Based Nursing, 2, 59.
Primary Mental Health Workers within Youth Offending Teams: a new service model
Callaghan, J., Pace, F., Young, B., & Vostanis, P. (2003). Primary Mental Health Workers within Youth Offending Teams: a new service model. JOURNAL OF ADOLESCENCE, 26(2), 185-199. doi:10.1016/S0140-1971(02)00131-8
2002
Childhood cancer and users' views: a critical perspective
Dixon-Woods, M., Young, B., & Heney, D. (2002). Childhood cancer and users' views: a critical perspective. EUROPEAN JOURNAL OF CANCER CARE, 11(3), 173-177. doi:10.1046/j.1365-2354.2002.00335.x
Lay evaluation of services for childhood asthma
Dixon-Woods, M., Anwar, Z., Young, B., & Brooke, A. (2002). Lay evaluation of services for childhood asthma. HEALTH & SOCIAL CARE IN THE COMMUNITY, 10(6), 503-511. doi:10.1046/j.1365-2524.2002.00390.x
Parenting in a crisis: conceptualising mothers of children with cancer
Young, B., Dixon-Woods, M., Findlay, M., & Heney, D. (2002). Parenting in a crisis: conceptualising mothers of children with cancer. SOCIAL SCIENCE & MEDICINE, 55(10), 1835-1847. doi:10.1016/S0277-9536(01)00318-5
Identity and role in parenting a child with cancer.
Young, B., Dixon-Woods, M., & Heney, D. (2002). Identity and role in parenting a child with cancer.. Pediatric rehabilitation, 5(4), 209-214. doi:10.1080/1363849021000046184
Parents' accounts of wheeze and asthma related symptoms: a qualitative study
Young, B., Fitch, G. E., Dixon-Woods, M., Lambert, P. C., & Brooke, A. M. (2002). Parents' accounts of wheeze and asthma related symptoms: a qualitative study. ARCHIVES OF DISEASE IN CHILDHOOD, 87(2), 131-134. doi:10.1136/adc.87.2.131
Teaching and learning about human sexuality in undergraduate medical education
Dixon-Woods, M., Regan, J., Robertson, N., Young, B., Cordle, C., & Tobin, M. (2002). Teaching and learning about human sexuality in undergraduate medical education. MEDICAL EDUCATION, 36(5), 432-440. doi:10.1046/j.1365-2923.2002.01198.x
A systematic review of the costs and effectiveness of different models of paediatric home care.
Parker, G., Bhakta, P., Lovett, C. A., Paisley, S., Olsen, R., Turner, D., & Young, B. (2002). A systematic review of the costs and effectiveness of different models of paediatric home care.. doi:10.3310/hta6350
Experiences of parents of children diagnosed with cancer can include delays and disputes
Dixon-Woods, M., Findlay, M., Young, B., Heney, D., & Cox, H. (2002). Experiences of parents of children diagnosed with cancer can include delays and disputes. Evidence-Based Nursing, 1, 28.
Systematic review and evaluation of the use of tumour markers in paediatric oncology
Riley, R. D., Heney, D., Jones, D. R., Sutton, A. J., Lambert, P. C., Abrams, K. R., . . . Burchill, S. A. (2002). Systematic review and evaluation of the use of tumour markers in paediatric oncology. Southhampton: Health Technology Assessment.
2001
Choosing and using services for sexual health: a qualitative study of women's views
Dixon-Woods, M., Stokes, T., Young, B., Phelps, K., Windridge, K., & Shukla, R. (2001). Choosing and using services for sexual health: a qualitative study of women's views. SEXUALLY TRANSMITTED INFECTIONS, 77(5), 335-339. doi:10.1136/sti.77.5.335
Parents' accounts of obtaining a diagnosis of childhood cancer
Dixon-Woods, M., Findlay, M., Young, B., Cox, H., & Heney, D. (2001). Parents' accounts of obtaining a diagnosis of childhood cancer. LANCET, 357(9257), 670-674. doi:10.1016/S0140-6736(00)04130-1
Book reviews
Young, B., Exley, C., & Dixon-Woods, M. (2001). Book reviews. Health & Social Care in the Community, 9(2), 119-121. doi:10.1046/j.1365-2524.2001.00277-3.x
Book reviews
Young, B., Exley, C., & Dixon-Woods, M. (2001). Book reviews. Health & Social Care in the Community, 9(2), 121-122. doi:10.1046/j.1365-2524.2001.00277-4.x
Book reviews
Young, B., Exley, C., & Dixon-Woods, M. (2001). Book reviews. Health and Social Care in the Community, 9(2), 118-119. doi:10.1046/j.1365-2524.2001.00277-2.x
Book reviews
Young, B., Exley, C., & Dixon-Woods, M. (2001). Book reviews. Health and Social Care in the Community, 9(2), 118. doi:10.1046/j.1365-2524.2001.00277.x
Book reviews
Young, B., Exley, C., & Dixon-Woods, M. (2001). Book reviews. Health & Social Care in the Community, 9(2), 122-123. doi:10.1046/j.1365-2524.2001.00277-5.x
Book reviews
Young, B., Exley, C., & Dixon-Woods, M. (2001). Book reviews. Health & Social Care in the Community, 9(2), 123-124. doi:10.1046/j.1365-2524.2001.00277-6.x
CaTLET: Evaluation of information leaflets for patients entering cancer trials
Lees, N., Dixon-Woods, M., Young, B., Heney, D., & Thornton, H. (2001). CaTLET: Evaluation of information leaflets for patients entering cancer trials. In PSYCHO-ONCOLOGY Vol. 10 (pp. 266). Retrieved from https://www.webofscience.com/
Narrative accounts of arriving at a diagnosis of childhood cancer
Dixon-Woods, M., Findlay, M., Young, B., Cox, H., & Heney, D. (2001). Narrative accounts of arriving at a diagnosis of childhood cancer. In PSYCHO-ONCOLOGY Vol. 10 (pp. 268). Retrieved from https://www.webofscience.com/
2000
Eating behaviour and its variability in 1-year-old children
Young, B., & Drewett, R. (2000). Eating behaviour and its variability in 1-year-old children. APPETITE, 35(2), 171-177. doi:10.1006/appe.2000.0346
1999
Partnerships with children
Dixon-Woods, M., Young, B., & Heney, D. (1999). Partnerships with children. BRITISH MEDICAL JOURNAL, 319(7212), 778-780. doi:10.1136/bmj.319.7212.778
1998
A mixture model for sucking patterns of breast-fed infants
Chetwynd, A. G., Diggle, P. J., Drewett, R. F., & Young, B. (1998). A mixture model for sucking patterns of breast-fed infants. STATISTICS IN MEDICINE, 17(4), 395-405. doi:3.0.CO;2-0">10.1002/(SICI)1097-0258(19980228)17:4<395::AID-SIM778>3.0.CO;2-0
A mixture model for sucking patterns of breast-fed infants.
Chetwynd, A. G., Diggle, P. J., Drewett, R. F., & Young, B. (1998). A mixture model for sucking patterns of breast-fed infants.. Statistics in medicine, 17(4), 395-405. doi:3.0.co;2-0">10.1002/(sici)1097-0258(19980228)17:4<395::aid-sim778>3.0.co;2-0
From feeds to meals: the development of hunger and food intake in infants and young children
Drewett, R. F., Wright, P., & Young, B. (1998). From feeds to meals: the development of hunger and food intake in infants and young children. In C. Niven, & A. Walker (Eds.), The Psychology of Reproduction: Current Issues in Infancy and Parenthood (Vol. 3, pp. 204-218). Oxford: Butterworth Heinemann.
Methods for the analysis of feeding behaviour in infancy: Sucklings
Drewett, R., & Young, B. (1998). Methods for the analysis of feeding behaviour in infancy: Sucklings. Journal of Reproductive and Infant Psychology, 16(1), 9-26. doi:10.1080/02646839808404555
Methods for the analysis of feeding behaviour in infancy: Weanlings
Young, B., & Drewett, R. (1998). Methods for the analysis of feeding behaviour in infancy: Weanlings. Journal of Reproductive and Infant Psychology, 16(1), 27-44. doi:10.1080/02646839808404556
1997
Feeding behaviour and its relationship to weight gain in infancy
Young, B. (1997). Feeding behaviour and its relationship to weight gain in infancy. (PhD Thesis, University of Durham).