Family Research Day
A recent Rheumatology Family Research Day brought together families, clinicians, charities, nurses, and research teams for a day of collaborative learning. The event was fun and interactive, enabling valuable discussions with our families and exchanging ideas on how to shape our strategy. Families were able to hear about the ongoing research at the EATC4C and share innovative ways they would like to be involved. Both young people and parents were able to connect with each other and listen to insights from older patients, who offered ideas and tips on navigating life as a young person with a rheumatic disease. Additionally, an art therapist named Gilly Balfour, led a great session that was enjoyed by everyone, including young people, parents, nurses and doctors.
WORD Day
WORLD YOUNG RHEUMATIC DISEASE DAY, known as WORD Day, takes place on 18th of March each year. This international awareness campaign was initiated in 2019, and it has since grown to encompass a wide variety of events both online and in person worldwide. These events take place across the globe, raising awareness and helping to educate on paediatric rheumatic diseases.
Two major international webinars are held each year with a panel-members made up of parents, young people, health professionals and clinicians. Over 200 people have attended these sessions from across the world, taking part in discussions and debates which have involved research, rheumatology treatments, vaccinations and the impact of COVID -19. The campaign has been supported by the Paediatric Society of Europe and has an extremely successful social media campaign that reaches out across the globe. To learn more, you can visit their website at www.wordday.org
Visit our WORD Day page here.
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